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booboo_bananas
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/17/2009 8:11 AM (GMT -7)   
 So I am a seventeen year old female that has been suffering from headaches for three years now. I have them 24/7, literally. Some days aren't has bad as others but then there are the days they leave me crying from the pain. They seem to be getting worse and worse. Some days it may be just a headache while other days its a headache and many other pains within my body. I  have been to about three of four different doctors they all say that it is a migraine but the medicine never works. And it seems to be that I only have some of the symptoms of a migraine. sad I could really use the help or adivce, and it seems as if I'm alone in this one. My parents pay no attetion to it anymore and my boyfriend just gets irrated.

korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 6/17/2009 10:57 AM (GMT -7)   
Welcome! Let me assure you that you're not alone in this one--you're among friends. I myself am approaching 7 years of 60/60/24/7/365 headaches/migraines. I go to the Jefferson Headache Center in Philadelphia and I've been there for three and a half years. They've been wonderful in trying to help and I think they're extremely competent but they've come to the conclusion that I've tried everything that they (and similar clinics) can offer. I'm on a lot of medication daily though I'm always in at least 8/10 pain, very frequently higher. Right now I'm trying to learn how to live a meaningful life as someone with constant pain. It's very hard but I'm making some progress.

Why don't you let us know some of the things that you've tried, as well as what your migraines are like. There are a lot of us here who have had very similar experiences and I think that we might be able to share our experiences and, at the very least, you'll be among friends. It can be really helpful to talk with people who have gone through or are going through the same sort of experiences that you are--I know it's helped me feel not as alone.

Again welcome, and I hope that we can be helpful! Hang in there. No matter how bad things are or seem now you DO have a happier future to look forward to. I promise you that.

With kind regards,
Ben

P.S. Oh, since you shared, I'm 24 years old and male. My headache started when I was 18 (January 11th, 2003 I think) totally out of no where right as I was visiting the college I ended up attending for the first time. I was able to battle my way through two full years at university and I very nearly finished my BS in Biology but things took a turn for the worse during the Fall semester of my Junior year and I was never able to finish another class. Right now, following my third planned hospitalization last summer (experimental ketamine infusion that didn't relieve any pain but put some things in perspective), I've been slowly piecing some of my life back together. I still can't work or finish my degree but I no longer spend months at a time without leaving my apartment and I've reconnected with friends who I wasn't able to talk to for years. Just now I'm about to go for a long walk (the only sort of exercise I can tolerate). My life is far from what I'd like but it's much better than it was a year ago and for the most part each month is a little better than the last. Recovery can be painfully slow but even if nothing can be done about the pain you can still live a good life. I'm confident that you'll learn how.
DX: NDPH, Recovered CRPS
RX: Lamictal, Concerta (Methylphenidate), Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Melatonin, Magnesium supplements.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans

Post Edited (korbnep) : 6/17/2009 12:08:55 PM (GMT-6)


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 6/17/2009 9:48 PM (GMT -7)   
Hello Booboo...and welcome!

I just wanted to say that just because you "only" have SOME of the migraine symptoms doesn't mean that your pain is not migraine! (and it also doesn't mean that you aren't suffering as bad as someone who has the full list of symptoms!)

Can you tell us what type of doctors you have seen and a little bit about your preventative/treatment plan!? I am guessing after 3 years you probably know a little bit about your "headache history" :-)

We are glad to have you here! Hope we can help...and at least be a group of people who understand and dont blow you off or get irritated with you because of your headaches.
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
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tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 6/17/2009 9:49 PM (GMT -7)   
...good to see you again Ben...
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
Thanks for Visiting HealingWell.com, Please Donate to keep Healingwell alive!
 
 
ER Treatment Form
 
 


booboo_bananas
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/18/2009 7:50 AM (GMT -7)   

 Okay well I have been to two different nuerologists, both saying its a migraine. I've been to the hospital and my regluar doctor. I've been to the chiropractor, he checked my back, neck, and jaw to see if they were causing my head aches. I've been to the eye doctor to see if that caused them either. But everything turned out fine. I've had an MRI and a CATSCAN along with blood work. All turned out okay. I have tried all the over the counter meds none worked what so ever. My boyfriend's mom has a friend that has simliar problems she went to the Ohio Clinic. And they supposebly test until they figure out the problem.

Along with Ben my headaches are usually and eight or a seven on a regular basis. But recently it has been really really bothering me. And it's not just my head my body has been aching. Like i feel like someone has beat me up. There are days I can't function but my parents aren't going to let me stay home from school or work. See there are days I go to school and i don't hear a word that any of the teachers say and it's really hard for me to sit through class. And with work I'm very sluggish and it's hard to work at the pace my boss wants me to work.

I also play soccer and I used to run track. I quit track it was too much for me to handle. The person at the hospital suggested I give up soccer but i can't get my self to do it...soccer is my passion, I love it. But after games i pretty much collaspe as soon as i step off the field. I cry in pain. My whole body gives out, it's as if my head is shutting my body down.

 


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 6/18/2009 10:13 PM (GMT -7)   
Have you read any information on fibromyalgia? A lot of people have this in addition to migraines.

Your doctor should be working on finding you a PREVENTATIVE medication that will keep the headaches away (and less about how to "fix" them after the fact!)

Don't give up...keep talking to you parents and doctors-explain to them how you are feeling.
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
Thanks for Visiting HealingWell.com, Please Donate to keep Healingwell alive!
 
 
ER Treatment Form
 
 


korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 6/19/2009 11:39 AM (GMT -7)   
tysmyboo said...
...good to see you again Ben...


I'm here! I check the forums at least every other day but don't always get the chance to reply (in case you haven't noticed I write VERY long posts). And my brother's getting married in two weeks so I'm a little busier than usual :)

I'll be posting sometime soon about some really interesting information that I found doing some research in a clinical headache textbook last night--possibly a major breakthrough (at least in having some new ideas...).

I'll be around!

Ben
DX: NDPH, Recovered CRPS
RX: Lamictal, Concerta (Methylphenidate), Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Melatonin, Magnesium supplements.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans

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