Posted 6/25/2009 7:32 AM (GMT -6)
Hi vickabee!!! I often get paralysed at one side of my face 10-15 minutes before i get paralysed at my right side of my body,
i too often have difficulties with my speech i start vomiting, and sometimes i ca´nt talk at all one or two words only, and get really
confused i dont understand much.
At first when i had theese attacks as i call them i too had some episodes when i had trouble swallow food and even water.
The first time i had an attack i got paralysed in both sides of my body where in hospital for one week, but after that it has always
happened to the right side of my body, there is some of us who have this problems in the left side and some in the right side.
Before i had medication for this i had only 1-2 days a week when i was ok, but now after the neuro gave me epilepsy medication
i have attacks only 3-6 times a month, so there is a big different when we medicate for the auras.
But today i am very happy to say that for the first time since June 2006 i have had none attack so ever for one month now!!!!
So...... try too find a good neuro who can help your daughter, and give her medication for this disease. Many neurologists have
never seen a case of either HM or basilaris migraine beacuse it´s a very rare disease.
I too did´nt now that migraines can do theese things, and that there is different kind of migraines!!!
Ok if you wondering of anything or just want to talk with someone about this who understand how it is to live with HM so i gladely
would do that.
It is hard for a parent or some family members to stand next to a person and see theese attacks and not be able to stop them.
OK enough for today, i have to start cooking here so my sons can get some food ( and of course me too )
Bye / Sweden