Posted 7/12/2009 1:34 PM (GMT -7)
Hi First i have to say that i no this was a topic about stupid doctors and so on, well bealive me i have met many of them too. I have had migraine for over 20-25 years and in those years have been several and several times at the ER beacuse of such a pain that i was ready to get use of my head if that could help me. After many years one of the times in the ER one neuro said that he thought i had migraine and he gave me one preventive med but it did´nt help at all and when he heard that the second time i met him, he said :- Well if Imigran doesn´t help you at all then it ca´nt be migraine, it has too be coming from your bad neck.
Exuse me???????? as we all no one medicine doesn´t fit and works for everyone .......... so YES many doctors are in the wrong line of work.
I often say that there are good and bad car mechaniks, so of course there must be good and bad doctors too!!!!
In 2006 i got paralysed when i was in my car and ended up in the ER and was in the hospital for a lttle over one week, they thought i have had a stroke
they took a MRI and some bloodtest but all was ok, and when my body worked and i could move again they´ve sent me home and said we don´t no what iswrong with you.
After that i started to have attacks of paralysis and speech problems etc etc 4-6 times a week from 8-24 h every time, many times for many days too.
It was´nt before i met another neuro professor in 2007 that i got the answer that i had FHM, wow what a relief to finally get the answer.
akhiker i don´t mind at all it´s ok to bombard me with questions, beacuse no one can understand it if they don´t have been through it themselves!!
As you see above they´ve took MRI and bloodtests all was ok, but when i finally met my neuro professor ( He´s really great and understanding by the way ) The first thing he said to me after i told my whole story was that he thought he new what was wrong with me, but that he had to rule out some things first, so i got EEG and more blood test and strenght test and so on.
He after theese said that i had FHM, and then he told me that there is 2 diseases who have similar symptoms and he had to role them out first one was Myastenia Gravis and the other one was a rare form of Epilepsy, well the first thing he suspected was FHM so he was right he said, and it was 17 years since he had a patient like me with FHM...... so here it´s VERY VERY rare, but of course my home country Sweden is´nt so big.
I Use Lamictal= epilepsy med , as a preventive med for theese attacks and YES there have been a really big different in my life, now i only have 3-6 attacks per month and seldom so hard like before.
But i have migraine headaches many times a week instead and for that i have some pain killers and Zomig nasal.
akhiker there is a topic called " Hemiplegic migraine " here on page 3, go and check it out we are many there who has been talking about this condition, I was soooooo glad when i found others here who had theese same problems as me, SO I UNDERSTAND YOU COMPLEATLY!!!!
We can chat there more!! if it´s ok for you?
OKEY enough for today i hope you all will bee migraine free!!!!!
With Love / Sweden