I am so sorry to hear about
the situation with your neurologist. I hate when we pay to see a doctor and end up seeing everyone BUT the doctor. Very frustrating.
I agree with Ben and his posts. Sometimes he can say the things I am thinking, only better.
As for my personal experience, I have been seeing a pain management specialist (After many years of what you describe) and I have had a lot of success with my PM doctor. They offered botox (denied by insurance), they work with different medications, I have had nerve blocks, radiofrequency lesioning and am going to have a spinal cord stimulator. I guess what I am saying is that, in my case, my pain management doctor seems more interested in finding relief. I realize some of these things aren't solving the root of the problem-but I take what I can get.
If I were you I would SPECIFICALLY ask to see the neurologist and give them one last chance...and then start looking for other options if you dont feel like you are getting anywhere with them. Life is too short and you are having too much pain to continue on the same path.
Good luck and keep us posted on how things are going!!!
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
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