Chronic daily tension headaches

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25BECCA13
New Member


Date Joined Apr 2009
Total Posts : 11
   Posted 8/19/2009 4:53 AM (GMT -7)   
Hi I have suffered from these headaches for 8 years now and cannot cope I have done everything right seen many nurologists had brain scans MRI scans x rays etc Botox and countless tablets I cannot cope I have even thought about ending it all which I'm to gutless to do! I feel so depressed and emotionally detached from everyone I'm so angry all the time and don't feel like I can connect with anyone, everyone I know says 'i know how u feel' but they don't mentally I cannot take this anymore, please someone help me get a cure for this Monster causing pain in my head everyday I miss so much time off work. Thank you

25BECCA13
New Member


Date Joined Apr 2009
Total Posts : 11
   Posted 8/19/2009 4:55 AM (GMT -7)   
Forgot to say also my latest neurologist recons it's a chemical deficiancy in my brain does anyone know how true that is? Also got a hiatus hernia and gullet problems which my consultant recons my headaches have caused? I don't know how true either of these statements are thanks

kymark
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted 8/19/2009 2:02 PM (GMT -7)   
I've had chronic tension headaches (diagnosed now as New Daily Persistent Headache) for 21 years now. Although I don't know of any "cures", you may find it helpful to talk to a therapist about the challenges of living with pain. After suffering for 8 years, you may need to accept the fact that this pain may well be with you for the foreseeable future and what you need are coping strategies to deal with pain, rather than just hoping for a cure.

I resisted this shift in my perspective, since I didn't want to admit to myself or anyone else that I may well have these headaches the rest of my life. It's something I still struggle with, and I won't claim I've never been tempted to decapitate myself during bad days, but even remotely serious suicidal thoughts should be taken very seriously. Pain and depression are closely linked, and depression may make you less able to make rational decisions.

I keep hoping in the back of my mind that somebody will come up with a cure for me. But I'm determined to live my life the best I can until that happens.

Best of luck to you,
KYMark

SMP86
Regular Member


Date Joined Jun 2009
Total Posts : 20
   Posted 8/26/2009 7:08 PM (GMT -7)   
The problem is there is no magic cure. We all wish there was one. I also couldn't agree more with Kymark about seeing a therapist.

There are many different kids of doctors/ clinical psychologists who can help give you coping strategies. I have started seeing a Mindfulness expert. Its kind of like meditation that you practice and then it starts to come into your daily life so if you are in pain you train your brain to deal with the pain in a different way. You still can have pain but it affects you much less. I know it sounds weird to see a psychologist but when medications fail its really a great option. Learning hypnosis is also very helpful I have found. One time I was away on vacation and did not have any more medication. Luckily my dad is a psychologist and he was able to help get me in such a deep state of hypnosis that I was able to get thought the pain. We also have a family friend who has had surgery without anesthesia because he is so good at controlling his brain and pain.

Lots of this is like new wave psychology but its been influenced by eastern thinking. Think of monks who can walk on hot coals. This type of therapy is more proactive like you have an 8-week plan its not were you lay on a couch and talk about your childhood. Not that there is anything wrong with that but for me I am liking the more proactive approach. It also has allowed me to realize I have more control over my pain. Sometimes there is a hopeless feeling that comes with the migraines/ headaches/ daily pain. Its like… why do I have to have this pain… I did nothing to cause it… none of the medications work.

So in addition to find a good nero to help you and keep trying different medications I would also add some type of therapy type treatment.

I don’t know what the doctor was talking about the chemical deficiency… other than you could be low on serotonin? That happens to those who get lots of headaches/ migraines.

I am sorry for your pain! I know how bad it can be and not to mention the physical and emotional impact it has on your life. You are not alone!

best

krustacea
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 9/1/2009 9:51 PM (GMT -7)   
Migraine and tension headache veteran, here; I've had them 29 years and 25 years respectively.  The tension headaches were a daily problem.  The migraines attacked every couple of months until I began taking triptans, when they were first introduced.  Eventually I had a migraine nearly every day as well, because Triptans cause rebound headaches, try to stay away from them!  I went away for 3 weeks last July.  I brought 18 tablets of 100mg Sumatriptan.  After 14 days I had none left; I had taken them all.  I was terrified.  I found a new neurologist when I returned home nearly a month ago, he teaches at Stanford.  He put me on Nortriptyline.  I'm only half way to full dosage, building up dosage very gradually, and I have had about 5 tension headaches, and exactly 8 migraine headaches since I began the treatment, 25 days ago!  I have a new life.  Fingers crossed that it will continue to work.  I feel like I'm in heaven right now.
 
I've also tried various therapies and eastern medicines, including acupuncture, kinesiology, massage, hypnotherapy, psychotherapy, meditation, yoga, and biofeedback.  I did find some migraine and tension headache relief from biofeedback.  But the pain pathways in my brain are so old and deeply engraved that I couldn't get the relief to go deep enough; the migraine won nearly every time.  The nortiptyline feels like it fills up the pain pathways with some kind of lubrication, or like it softens the pathways somehow.
 
Don't give up hope!!
 
 

bocciagirl
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/16/2009 9:10 PM (GMT -7)   
Hello everyone
 
I am 28. I have Athetoid Cerebral Palsy.
 
I have a headache 4 weeks now. In the morning sometimes it is dill pain and other times sharp pain. If I get stress it gets worse.
 
 
Is it a tension headache?

korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 9/17/2009 8:41 AM (GMT -7)   
krustacea said...
Migraine and tension headache veteran, here; I've had them 29 years and 25 years respectively. The tension headaches were a daily problem. The migraines attacked every couple of months until I began taking triptans, when they were first introduced. Eventually I had a migraine nearly every day as well, because Triptans cause rebound headaches, try to stay away from them! I went away for 3 weeks last July. I brought 18 tablets of 100mg Sumatriptan. After 14 days I had none left; I had taken them all.


Krustacea,

Like nearly all abortive medications triptans have the potential to cause rebound headaches if not taken as directed. Taking an average of more than one dose/day for two weeks is a sure recipe for rebound. Typically most triptans should be taken no more than two times in one day and two days in one week. That's 8 every two weeks. It's neither wise nor safe to take more than twice that amount. When used correctly triptans are probably the most effective headache abortives available (for the most people that is--they do very little for me).

I'm glad that your headaches are under control since you've started taking a daily preventative medication. I hope that your headaches become even less frequent. But even after you've built up a therapeutic dose in your system it's still (unfortunately) likely that you'll at least have the occasional bad headache. Having an effective abortive medication (and using it correctly) will help bridge the gap between reduced frequency and true control. I suggest that you speak to your new neurologist about your experience with Imitrex.

Best of luck,

Ben
DX: NDPH, Recovered(?) CRPS
RX: Lamictal, Namenda, Wellbutrin XL, Oxycodone, Oxycontin, Concerta (Methylphenidate), Clonazepam, Rozerem, Magnesium (1200 mg/d), Riboflavin (400 mg/d).

PRN: Ketamine nasal spray, Toradol IM, Celebrex, Haloperidol, Lodine, Zofran, Phenergan, Ambien CR
rarely: Migranal, Thorazine, DHE IM, Droperidol IM, Reglan, Provigil, triptans (Imitrex, Maxalt, Relpax, Zomig, Axert, Amerge)

I can be contacted personally via email at korbnep:healingwell@gmail.com.

Post Edited (korbnep) : 9/17/2009 9:44:22 AM (GMT-6)


judiannp
New Member


Date Joined Apr 2015
Total Posts : 3
   Posted 4/8/2015 4:25 AM (GMT -7)   
Hi,

I suffered from tension headaches for 2 years. I TRIED EVERYTHING. The only thing I found at the time that worked was an anti-depressent Nortriptyline. But only took it for three months because I was not comfortable taking this drug. My headaches returned almost immediately. At the onset of my headaches, I had taken a blood test that indicated that I was deficient in Vitamin D. At first I did not connect the two, but a year later, I was desperate to find an answer to this dibilitating problem, so I started taking VITAMIN D. By the SECOND day, my headaches were gone! Never to return. This testimony is true and I just want to pass it on, because there are so many sufferers out there that deserve to live out their life unburdened by this constant dull aching pain in their head!

jac84lp
New Member


Date Joined Apr 2015
Total Posts : 4
   Posted 4/14/2015 3:37 PM (GMT -7)   
Hi Judiannp. Your post regarding VITAMIN D deficiency caught my attention. I have been suffering from tension headaches EVERYDAY for the past 8 months ever since I had a lumbar puncture 8 months ago. I have also tried nortriptyline for 6 weeks but had to stop taking it due to it's side effects. I tapered off the nori in one week and have a nightmarish time dealing with withdrawal symptoms. My question for you is did you ever have nortriptyline withdrawal? Also, what brand Vitamin D are you taking? I have also been tested deficient for Vit D, but I never put Vit D and tension headaches together. Are you still free from headaches now? Thanks.

judiannp
New Member


Date Joined Apr 2015
Total Posts : 3
   Posted 4/14/2015 6:50 PM (GMT -7)   
Hi Jac841p,

First of all, I did have horrible withdrawal side effects. I foolishly, just stopped taking them. I suffered about three days, until I remebered I should have done it gradually. I guess I was just desperate to be done with them, and wasn't thinking.
As for the Vitamin D, I just bought a "natural" brand at the drugstore. Now I use a Vitamin D product from Standard Process, called Cataplex D. (800iu). I get it from my Ciropractor's office. But I have to say, ther result is the same between the two. They both work! I never miss a day! I accidently stopped taking them for a week, and my headaches returned. I realized I had forgotten to include them with some other supplements I take. That proved it to me, I can't live without Vitamin D.
I really wish you the best, and hope you will let me know if it helps you.

Please don't wait any longer before you give Vitamin D a try

jac84lp
New Member


Date Joined Apr 2015
Total Posts : 4
   Posted 4/15/2015 7:39 AM (GMT -7)   
Hi Judiannp. Thank you so much for your reply! I'm currently still going through terrible withdrawal from the nori. It's been over 2 weeks, but i think the worst is over. My heart is still racing and the muscles spasms are there from the side effects. My insomnia was awful the first 4 days after i stopped taking the nori and i would break out in sweats and breath heavily. These symptoms has been less intense. I'm going to hold off on taking the vitamin D until I've recovered from the withdrawal. It's funny that I've always had my vitamin d sitting next to me but never took it even though i know I'm very deficient. I just never thought vit d deficiency could be a cause for headaches. I'm also going to take magnesium as well since I've heard that vit d requires magnesium to convert it in to an active form to be used by the body. Have you tried magnesium supplements before? I'll certainly give you an update as soon as I've added vit d to my regimen. In the mean time im going to go outside and soak up some sunshine

judiannp
New Member


Date Joined Apr 2015
Total Posts : 3
   Posted 4/15/2015 1:06 PM (GMT -7)   
Hi Jac 841p,

Ah, sunshine!! Good idea. We live in Michigan, so no wonder I am deficient in Vitamin D. Sorry to hear you are having such problems with the withdrawal from Nori. It was awful, but did not last as long as what you are experiencing.
My problems began in 2009 with a fall at a bowling alley. Chasing after my granddaughter, my foot wet over the line, (they most likely just polished the alley) feet went, head came down. Headaches began then. Along with other issues. Went to Dr.,Chiro., no one could help. Four months later I went to a neurologist, who prescribed Nori. Helped, but like I said didn't want to stay on it. So continued to suffer for at least another year with the tension headaches. Honestly, it was hard to function, but plugged along, as I'm sure you are doing. It was almost 2 years from the date of my fall, that I started taking Vitamin D. I too knew about my deficiency, but for some reason, didn't connect it, until I perused the internet for answers and came across an article. Now when I look there are many more articles about the Vit D and tension headache relationship.
I hope you find some relief very soon.

coolhandlk1
New Member


Date Joined Apr 2015
Total Posts : 2
   Posted 4/21/2015 8:45 PM (GMT -7)   
I have been suffering from chronic headaches for over 10 years. From my research I deduced that they were tension headaches. I take Imitrex sumatriptan for them and it is very effective. From reading the above replies however it seems that a triptan should not be effective for a tension headache? it is a vassal constrictor and tension headaches are caused from vassal constriction no?
I am interested to try alternatives such the nortriptyline as I would love to stop taking the imitrex. I am curious if the original author of this thread has tried Imitrex? Hope we all find healing....;)
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