Hemiplegic Migraines or NOT!!!!

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New Member

Date Joined Sep 2009
Total Posts : 1
   Posted 9/2/2009 4:19 PM (GMT -6)   
Hello all I would like to tell my story. I have had migraines all my life as long as I can remember anyway... I am 32 yrs old. Recently on Aug. 30 I woke up from a good rest I thought that had relieved a headache from the day before. I got up just as my normal routine and went and fixed my coffee for the morning. I then noticed a numb like area on my left outer thigh, didnt think anything of it.. other than it felt funny to me and I knew it wasnt right. Later about 4 to 5 hours I started to feel this tingling sensation, numbness like in my left arm and up my shoulder, it then preceeded to move to the left side of my face, I just did not feel right and knew it was not normal. I called my mother who is a RN. She told me to go the ER she thought I may be having a stroke. Within an hour I got a severe headache that would not stop throbbing on the left side of my head. The Er doctor did a CT scan, then tried to diagnosis me with MS. My family told him that was not good enough for them and wanted more test run. He then admitted me so that they could do a MRI and consult the neurologist. The next morning the headache was gone but the tingling sensation and heavy feeling in my left arm was still there. The neurologist orders a ECHO, EKG,MRI, and blood work, and ultrasound of my neck arteries. These test come back fine. He then tells me that I have what he called variant or complicated migraines, but never does he say Hemiplegic. This is the only one I can find that has these symptoms. Can anyone please help me to figure out if this is what I actually have and is that his way of not saying Hemiplegic. I do have migraines that run in the family, my mother and grandmother have them and have all their lives. Any help or information would be gladly appreciated. confused

Regular Member

Date Joined Jan 2009
Total Posts : 55
   Posted 9/3/2009 3:36 PM (GMT -6)   
Hi Southern_mom!!!  First i have to say that what kind of Doctor gives a MS diagnosis right away?? good that youre family said that it wasn´t good enough!!  I have Familial Hemiplegic migraine ( runs in the family) and they can see it in a geenetest, but there is another kind of HM it´s called Sporadic hemiplegic migraine then they ca´nt see it in a geentest but they have the same symptoms.
Often the neurologists have never seen a patient with HM beacuse it´s so rear, so maybe he didn´t new so much about it?
many of us have had too wait a long time to get our diagnosis, my neuro told me that they ca´nt put a HM diagnosis before they have ruled out other diseases that gives the same symptoms and that you have to have had at least 2 attacks, the main thing in HM aura is that we get the paralysis, you wrote that you got a heavy arm then. I think that it was heavy beacuse it was week a little paralysed.
But no one here can tell you if you have HM or not that can only a specialist do, so if i was you i should look for a migraine specialist .
And another important thing write it down on paper what happened how many hours or minutes or days you had that and that symptom, beacuse it´s so easy to forget things when you sit at the doctors office and are about to tell him everything.
I am 45y and have had " normal migraine" without aura for over 20y, but in 2006 i got paralysed and then my hell started had HM attacks many times a week with soo many different symptoms ( the same as  when you have a stroke)  So...yes migraine often changes for many of us.
Good Luck and keep us posted if you are wondering about something!!   wink   Sweden
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