I have been browsing this board for a long time and really do love the way you all seem to support each other here. I wanted to share my story to see if anyone had some insight.
about 1 year ago I started getting horrible pressure behind both eyes to the point that even closing them hurt, I would lay on the bed with a warm rag across my eyes to try and ease the pain, I went to the eye doctor and he told me he thought I had a pseudo tumor behind my left eye. He referred me to a neuro. I did not go as my husband lost his insurance shortly after that. Fast forward to about 6 months ago I started with R sided weakness, dropping stuff, etc. I had fallen 2x and had urinated on myself 2x, blurred vision, that awful pain behind my eye, but just ONE eye, my right...Also extreme muscle fatigue and weakness, shocking type pains, and a feeling like a rubberband around my waist...I have FMS but greater than the norm. Made appt at PCP and was referred again to a neuro with the bottom of the referral saying R/O MS. Before I could make my appt with the neuro I fell again at work this time. This was not to long ago, I work at a county jail as an EMT-I and my coworkers were aware of what was going on with me. I did not have any LOC but I felt dizzy and weak. They took my pressure and it was 98/58 and HR 144. Blood sugar was normal, the doctor there in the jail said to do an EKG which showed the tachycardia and a block. He says go to ER, had a coworker take me to the ER, and this experience I will not bore you with the detail was a nightmare hospital stay, I will NEVER EVER go there again. In the end I was admitted for a neuro deficit per my med records, and abnormal EKG, they did cardiac work-up, told me it was normal, they did neuro testing MRI, CT said it was normal and scheduled me for a VNG test?? and if that was positive then a spinal tap.
Since this incident I have had the WORST pain behind my right eye, the doctor at the hospital said it was an 'intractable vascular headache' well they discharged me with Percocet, Midrin and a RX for Topomax, this is after a 4 day hospital stay. I got home took the percocet, which I have never had before and had a BAD reaction, I had whelps and redness everywhere, I could not stop itching...Then it became maddening the itching. I got into a bath of oatmeal and vinager in the water, home rememdy and it worked, called the doc said no more percocet, and the topomax needs a prior approval so now what....He calls in Stadol NS. OK, this stuff helps but knocks you OUT! But the pain relief is short lived. Also there is only like 10 or so doses, so I go back today and tell him I need refill and would like to take something in between using nose spray instead of going to that every 4 hours or so, he gives me Lortab 5mg 2x daily and a refill of the Stadol but tells me that it can cause heart failure and to "be careful" with the Stadol. I am getting nervous as this pain has NOT let up since the incident at work. I'm scared as to the thought of having to deal with this all the time and not getting it to "break" I have dealt with chronic pain in the way way past then got a hysterectomy and got to feeling better and I do not want to go down this road again...So if you are still with me after all this, do you have any advice or thoughts or just prayers would be nice...
I am glad I found this place...