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littleone123
New Member


Date Joined Oct 2009
Total Posts : 2
   Posted 10/12/2009 8:10 AM (GMT -7)   
Does anyone else have this problem. I was recently diagnosed with this........psuedotumor. Another person with this problem to talk to would be great.

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 10/14/2009 1:17 AM (GMT -7)   
Pseudotumor cerebri:
https://www.google.com/health/ref/Pseudotumor+cerebri or http://headaches.about.com/od/allheadpaintype1/a/what_ptc.htm

I'm not sure if there's any regular members here who have the same diagnosis, however there are lots of people dealing with headpain...a lot of them don't have an accurate diagnosis...

Maybe you could share your symptoms and that could help others "see" if its a possible diagnosis for them.

Welcome to healingwell by the way!
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
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korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 10/22/2009 9:44 AM (GMT -7)   
As about.com says in the page that Sara linked to, pseudotumor is more commonly (or at least accurately) referred to as Idiopathic Intracranial Hypotension (IIH). It's a diagnosis that's typically made from imaging tests and/or lumbar puncture.

It's called idiopathic because the cause of the intracranial pressure increase is often unknown or difficult to figure out. But there are a lot of known causes that your doctor will most likely be testing you for, probably in order of the likelihood and seriousness of the potential underlying condition. Though it does depend on the cause, in general it is a manageable condition. The biggest concern is usually preventing vision problems from developing. In a significant majority of these cases no long-term vision impairment occurs.

Anyhow, again, the treatment for IIH varies a great deal depending on the suspected (or confirmed) cause. I wish you the best of luck--I'm sure it'll work out!

Ben
DX: NDPH, Recovered(?) CRPS
RX: Lamictal, Namenda, Wellbutrin XL, Oxycodone, Oxycontin, Concerta (Methylphenidate), Clonazepam, Rozerem, Magnesium (1200 mg/d), Riboflavin (400 mg/d).

PRN: Ketamine nasal spray, Toradol IM, Celebrex, Haloperidol, Lodine, Zofran, Phenergan, Ambien CR
rarely: Migranal, Thorazine, DHE IM, Droperidol IM, Reglan, Provigil, triptans (Imitrex, Maxalt, Relpax, Zomig, Axert, Amerge)

I can be contacted personally via email at korbnep:healingwell@gmail.com.


Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 10/22/2009 9:35 PM (GMT -7)   
As far as I know, pseudotumor cerebri is intracranial hypertension.
 
The hypotension is the less serious kind, as found in conditions such as CSF leak, etc, almost always harmless despite the annoying symptoms.
 
Pseudotumor cerebri, on the other hand, can sometimes be quite malicious, and should be monitored or treated if necessary.

korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 10/23/2009 8:52 AM (GMT -7)   
Sorry that's a typo. It is indeed hypertension. I later commented on the pressure increase but I just mindlessly typed hypo instead of hyper. Thanks for pointing it out.

Ben
DX: NDPH, Recovered(?) CRPS
RX: Lamictal, Namenda, Wellbutrin XL, Oxycodone, Oxycontin, Concerta (Methylphenidate), Clonazepam, Rozerem, Magnesium (1200 mg/d), Riboflavin (400 mg/d).

PRN: Ketamine nasal spray, Toradol IM, Celebrex, Haloperidol, Lodine, Zofran, Phenergan, Ambien CR
rarely: Migranal, Thorazine, DHE IM, Droperidol IM, Reglan, Provigil, triptans (Imitrex, Maxalt, Relpax, Zomig, Axert, Amerge)

I can be contacted personally via email at korbnep:healingwell@gmail.com.


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 10/23/2009 1:53 PM (GMT -7)   
The woman who used to be the "expert" on the about.com site had pseudotumor c which is why I posted that information, maybe you could reach her. Teri Robert (she has a book or two published as well)
 
Sara
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
Thanks for Visiting HealingWell.com, Please Donate to keep Healingwell alive!
 
 
ER Treatment Form
 
 

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