I have HM and have the same problems with a terrible headache many times a week, my paralysis, speech problems etc etc. have changed dramatically since
i started with a preventive called Lamictal it´s a Epilepsy med, but it only helps with the paralysisi etc. from having attacks many times a week from 8h-the longest 2 weeks, i now only have atttacks 2-6 times a month, but there have been sometimes a whole month between the attacks too, but for me thats rare.
Okey BUT i am´currently trying a med called Verpamil that should bee good for both the paralysis AND the migraine pain. There is a lot of us with HM that´s using it and have had great respond from it.
I no that Triptans are not tried out for our group of migraine, and if it is doing more harm than good we and the doctors don´t no, but we are many who have the triptans too....i have it too, and yes they helps, some Neuros don´t want to describe it but many do.
So my question to you is...how long have your son used his preventive that he have now? And if he have had them for long maybe the neuros should try another one?
The migraine specialist that your son has, do you no if he has other patientes with HM?
Many Neuros and M Specialists have never seen a patient with HM so....yes it is very rare!!
Plenty of hugs and strenght too you!! / Sweden