Headaches began on November 17, 2008. Went through 5 different antibiodics. Finally discovered I had a sinus infection with wonderful MRSA. Had surgery on Feb 20, 2009. Went through the 3 week healing period, got chemically dependant on the wonderful narcotic pain killers. After stopping all medication and going through a VERY PAINFUL 2 week period because "it's probably rebound headaches you are having" only to be told "huh... that's not it". I've had MRI x 2, MRA, CT. 1st MRI (7/8/09) showed arachnoid cyst, cerebral tonsils hung 2mm below the base of my skull. MRA was to rule out anurysm. And the CT was just on Tuesday (was in ER after 32 straight hours of TERRIBLE PAIN). I was told it showed nothing (though I didn't see the results for myself). Repeat MRI was 1/18/10 and I was told "It showed remarkable improvement over the MRI on 7/8/09" whatever that means. I have migraten, duradrin, tramadol w/ advil, and once again, percocet after the ER visit. I've kept a headache diary, rarely drink ANY caffiene, don't drink alcohol, am very careful about
what I eat (ex: no MSG), had a sleep study, I am seeing a headache specialist. Long story short... I STILL HURT!! I feel like I have lost the last year of my life. I've tried natural remidies (peppermint oil, heat, ice, massage), tried sleeping in, tried waking earlier, tried more/less sleep. I've quit the second job I've had since this all started. The last one was a well paying job that trumped my husbands pay check. Gone. I am desparate. I don't know what else to do. Also should mention that I've recently tried wellbutrin XL (lasted 8 days) and that's when I landed in the ER with the HORRIBLE pain. I was told to stop the wellbutrin. To describe my headaches, I feel like it's in the very center of my head. Sometimes it's all over but for the most part it's consistent. Never starts/stops at the same time. Comes on VERY suddenly and never the same time every month (nope - not hormonal either). Before the wellbutrin, my abortives and the tramadol with advil (I alternate them) would work really wel). Since I stopped the wellbutrin (was only on it 8 days - 150mg and stopped taking it 4 days ago) my abortives only last maybe 1.5 hours and I am having to take 2 times as much as before to get the 1.5 hours of releif. Please excuse the spelling and terrible grammer. I am HARDLY on the computer anymore as it just hurts too much and I'm just not thinking too clearly. Anyway, if anyone sees some sort of pattern here that I, my family DR, my OB/GYN and past 3 neruologists am missing, PLEASE fill me in!! Thanks!