Hi gallyndur, My daughter is the one with new daily persistent headaches. She is 24. She has these headaches for 4 years.We live in New Jersey. How I found out about this surgery, I came across another site. MJ Junction.Com.
There are so many people who have had this surgery by Dr Perry. As you mist know he works with Dr Blake.
We flew to Houston about 6 months ago and meet Dr Blake. Ashley is a candidate for the nerve decompression surgery. Just recently we flew down again and meet Dr Perry.
Right now his office is trying to get the surgery approved for Ashley.
We have exausted everything.
She was hospitalized 3 times at Thomas Jefferson Headache Center in Phila,Pa. to try to break the cycle of the headaches. Two week stay.
Even went to Michigan Head and Neurological. She was hospitalized there for two weeks, nothing.
Have seen every headache specialist in N.Y.C.
Three pages of medications that did nothing.
Right now she is on Kadian(morphine),percocet,xanax. And that barely works.
She was detoxed twice.
She hates being on these pain meds.
But right now Dr Blake says what other choice do we have right now.
Please check out the MDJunction.Com site.
There are so many people that have had the surgery.
I will keep you updated.
Can you tell me what tests or other that your daughter had done when she was at Thomas jefferson to break the pain cycle and also what they did for her at michigan head and neurological. I have suffered ten years with temporal, bilateral headaches. The headaches have always been in the same place. This is my second sick leave from work (I am a paediatric nurse) right now since Oct. 2008. My headache is there every minute of every day and I can't sleep . My pain is always 10/10. I too have seen every dr. possible, taken every kind of med and nothing has helped, done all forms of treatments and all tests are negative. i have done orthodontics for tmj and that is fine now but the headaches are still there. No one knows what it is and they all say poor prognosis. I live in Ottawa, ontario, Canada. i wish i was in the states to try some of your big headache centers but we have no money left now to go to the states. I wrote to Oprah to see if she could help me but of course never heard from her. i don't know what to do anymore. CAN ANYONE HELP ME!!!!!!!!!!!!!
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada