hey i saw that you have UC..i have crohn's and I just started having severe headaches/migraines too...i asked my doctors if they were related and they said no, but it makes me wonder!...I always wonder if it's all the drugs I'm on, but also how about all the stress that our chronic illnesses cause us? I don't think it effects me, but when I really think about it, I'm always worried about my next flare up, and all the other crap that goes along with dealing with crohns and how it affects my life and my future...also, i see you say you don't ever want to be on remicade, why's that? just wondering! hope you don't mind me asking! I don't know a single person who's on it, including someone in their 20's!! So it's nice to talk to people who deal with the same stuff as I do :) lol...
23 year old female
Diagnosed with Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...nexium 2x/day, remicade 7.5mg/kg/5 weeks, neurontin (for periperal neuropathy, secondary to crohn's), pamelor (for chronic headaches & migraines)
As needed...zofran, lortab, tylenol 3, fiorocet