At the end of my teather - please help!

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New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 3/25/2010 3:41 AM (GMT -6)   
Hi there!
Sorry to bother you. I had posted before as I was concerned about Hemiplegic Migraines, but no-one posted back.
Since then I have been to my doc who was terrific - she completely agreed with the diagnosis, referred me as an urgent case to a neurologist & placed me on Pizotifen. A few days in to it I was extaic - after all I have been suffering with paralysis, migraines etc. pretty much constantly (although there do seem to be distinct 'episodes' for over a month. I did not have any symptoms, until yesterday when I started with a fever, & then went on to develop a massive attack - my right hand side is once again paralysed.
I know that many drugs have a therapeutic lag - is anyone else on this? If so, did they find it took a while to 'kick in', or does it just simply reduce severity etc.
Any advice would be so very gratefully accepted.

art chick
New Member

Date Joined Sep 2009
Total Posts : 11
   Posted 3/25/2010 8:40 AM (GMT -6)   
hi snowy, so sorry to hear you are having such a rough time. I have hemiplegic migraines to and because i get them often i have been put on topamax as a preventative. preventatives take a couple of weeks to start working and have more side effects at the beginning that improve with time from what i understand and that is how it was for me.

hemiplegic migraine can be very scary and i totally understand what you are going through. a website that has an active base of people with this diagnosis are at and then go to the forums to talk. there are a lot of articles that will help you too!

take care. . .there will be better days ahead. . . .
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