daily pressure headaches for years

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Tamara R. Klumpyan
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/27/2010 10:23 AM (GMT -7)   
I have had daily (no breaks) pressure headaches for 13 years now. It's the same day after day....I wake up with no headache, I get up and take a bath, only mild pressure, then I get upright and it begins. It starts out mild and gradually increases as the day goes on. I am now only upright for 6-8 hours a day. I work half my day from bed and half upright. I can't work outside my home because by the time I get ready and drive to work my pressure is already at a 6 or 7. I'm so tired of this. It has really turned my life upside down. What have I done medically? Here's the list: 8 or 9 sinus surgeries in last 15 years with no relief of pressure headaches, MRI, Ct with contrast, ct without contrast, seen a neurologist who insists it's migraine (I can look directly at the sun with no increase of pain!) and gave me a prescription that I should take at the onset of the trigger and to only take it twice a week (since when is getting out of bed a trigger), a sinus specialists who spends my entire visit admiring the wonderful job he did on the lothrop procedure he's done a year ago. I believe there is something wrong with the amount of CSF around my brain. No one is listening to me. Anyone is a similar situation?

Tamara R. Klumpyan
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/27/2010 7:14 PM (GMT -7)   
What was the trigger that started your sisters headaches?  Mine started when I quit smoking and when I started working at a company that dealt with the fixer that's used to take the silver off of xrays when people have them done at hospitals.  So I don't know which is the culprit.  I also have a disease called samters syndrome which consists of being allergic to aspirin, asthma, and nasal polyps.  For most years now I thought it was from that disease as the polyps go crazy and fill my sinuses fairly quickly.  I now believe that blocked sinuses aggravate the chronic pressure headaches but are not the cause of them.  Just in the last year I've found that my type of headache has a name and that is orthostatic which means it is worse while I am upright and is relieved while laying down (pressure does not go away laying down but is remarkebly better).  After 13 years and a few different doctors...no one told me that I had a specific type of headache.  I found that on my own.  My symptoms fit perfectly with low Cerebral spinal fluid, but doctors aren't listening to me.  I see my pain doctor this week and will talk with them.  I've been looking for a magic cure and finally gave up until this last year when the subject of low CSF came up.  Can you tell me more about your sister?
 
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