I have suffered ten years with severe bilateral temporal headaches. This pain has been present 24/7 for the last two years so I have been in bed pretty much all that time keeping ice on my head trying to remain sane. I have seen tons of doctors, taken all kinds of meds and nothing has helped and done all forms of treatments. Now we have no money left and still no answers to why I have these horrible headaches. I am at the end of my rope if you know what I mean. I am in Canada and all the doctors I have seen have told me they have tried everything they know and sorry we can't help you is all I hear. I was wondering if I went to the best US headache center if it would be possible that I find out something the doctors here have not done??? What do you think? Where would you recommend I go to ??? I'll answer any questions you might have. Thanks in advance for responding. I am trying to find some hope.
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada