hermicrania continua!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Jun 2010
Total Posts : 6
   Posted 6/8/2010 6:54 PM (GMT -6)   
Hi i am new to this forum! glad i found it! my story... I started with a cluster headache cycle back at christmas. i got it under control by february but had constant uncomfortable low grade headache on the right side of my head (cluster side) for months after. When i found a new headache specialist here in south florida the end of april he diagnosed me with "hermicrania continua" which is chronic migraine/cluster mix! my neck is affected with these headaches and have been on indomthicin 150mg's for the headaches helps some. I have gotten ocipital nerve block injections twice so far and it helps alot! anyone here have similar condition? I hope all is well and glad i found this site

Veteran Member

Date Joined Jan 2006
Total Posts : 1308
   Posted 6/12/2010 11:42 AM (GMT -6)   
Hi Anthony,

Welcome to Healing Well. I have Hemicrania Continua and Chronic Migraine. I too benefit from the GONB's (Greater Occipital Nerve Blocks). Sadly I can no longer have Indomethacin (Indocin) as it has damaged my Gastrointestinal tract.

I was put forward for ONSI (Occipital Nerve Stimulator Implant) last December, and have today received a letter from my Primary Care Trust stating that they are going to fund it for me!!!! If you wish to know anything about ONSI please let me know.

take care

Co-Moderator of the Migraine/Headache Forum

Veteran Member

Date Joined Dec 2004
Total Posts : 921
   Posted 6/14/2010 12:23 AM (GMT -6)   
That is great news Ann!
Sara-Migraine/Headache Forum Moderator
Battling head pain for 17 years.
DX: occipital neuralgia, cervical spondylosis, fibromyalgia
Boston Scientific Spinal Cord Stimulator implanted 12/14/2009
Duragesic Patch
Norco 10's prn
 Thanks for Visiting HealingWell.com, Please Donate to keep Healingwell alive!
ER Treatment Form

Veteran Member

Date Joined Jan 2006
Total Posts : 1308
   Posted 6/14/2010 2:09 PM (GMT -6)   
Thanks Sara, will keep you posted!
Co-Moderator of the Migraine/Headache Forum

New Member

Date Joined Sep 2010
Total Posts : 11
   Posted 9/9/2010 4:40 AM (GMT -6)   
Hi Anthony,i also have Hemicrania Continua at present it is very agressive and over the last 3 months have had 2 x GNOB which have failed to have much affect but am really glad you found some relief.At the beginning of October i will see a consultant who will then review treatments.He mentioned a three point nerve injection every three months and various drugs,as the topiramate has failed(am currently being weaned off,THANK GOD!!!!!) and 75mg x3 dailiy of Indomtacin,which does subdue pain for a short while but alas not effective enough!

Hope all contiues well,
Take Care,
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 1:38 PM (GMT -6)
There are a total of 3,006,501 posts in 329,346 threads.
View Active Threads

Who's Online
This forum has 161835 registered members. Please welcome our newest member, scattycatty.
308 Guest(s), 12 Registered Member(s) are currently online.  Details
notsosicklygirl, mysweetpanda, suzy-q, Anitas, Bob in Elkridge, Mercy&Grace, cilly, Serfr, ASAdvocate, ks1905, Estarnes, k07