migraines I need help

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brandymoree
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/26/2010 7:12 PM (GMT -7)   
Hi,
I have been have migraines for 10mo everyday. now and I have been to 3 doc and I also have been going to my famliy doc and they sill can not tell me what is going on or why. They have done MRA OF THE CAROTIDS,MRA OF THE CIRCLE OF WILLIS,EEG,VISUAL EVOKED RESPONSE,AUDITORY BRAINSTEM EVOKED RESPONSE,NONINVASIVE CAROTID STUDIES,FORTY-EIGHT HOUR AMBULATORY EEG,Lumbar puncture, CAT, BLOOD WORK, and they have told me that everything has come back normal.They have put me on evrything for migraines that they know of and nothing is working, they have been giveing me shorts for them and that is helping but I want all of it to stop.They have made my life hell can anyone help me plz...

Post Edited (brandymoree) : 6/26/2010 8:15:32 PM (GMT-6)


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/27/2010 7:49 AM (GMT -7)   
Hi Brandy, I am sorry you are having such a rough time right now. Headpain is horrible, I know. I have had chronic daily headaches and migraines since I was 18 and I am now 41. I too have had all of the tests done, seen a bunch of different docs and specialists and have tried all of the so called migraine meds, nothing worked for me either. In fact some of the meds made me really sick.

Then I was diagnosed with fibromyalgia too, and my doc put me on a mixture of meds and I now get some relief. The oxycontin helps with the headaches and the fibro pain. If the pain shots they are giving you are the only thing that helps has your doctor talked to you about trying a low dosage narcotic? Sometimes that is the only thing that helps, although alot of doctors don't like to give them for headaches because of rebound headaches. That is why mine went with oxycontin because it stays in your system, therefore you shouldn't get rebounds.

I really hope you can get some relief soon, and I am glad you found healing well. This is a great place with alot of caring members. Please keep us posted. Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 6/27/2010 11:44 PM (GMT -7)   
Hi, have you considered writing down anything and everything you eat and drink? By doing this you can seek a "common factor" and see if that is a "trigger." For instance if I drink over 20oz of soda, migraine. More than 2 bananas, migraine. More than one small piece of chocolate, migraine. You can look for your common thing and eliminate that for like a month and see if there is any improvement. Only take away one thing at a time, or you don't know which one is your trigger. Also, I have a combination of different kinds of migraines. Migraines can be also linked to your heart in some cases. Your doctor's have not done a complete work up on you either I noticed. A CAT scan is much more effective than a MRI. Also, you should have xrays done of your spine and neck. I also get migraines because I have a slight curve on my spine up where my neck meets. Perhaps use accupressure and chiropracting adjustments for a little bit of relief.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


bowengirl
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/4/2010 3:57 PM (GMT -7)   
Hi Brandy, Bowen therapists have a specific protocol for alleviating migraines that is very effective. See if you can find one near you.

Hope you get some relief soon.

Ladyhawk
New Member


Date Joined Jun 2010
Total Posts : 9
   Posted 7/5/2010 8:51 AM (GMT -7)   
smurf Hi Brandy.  I feel for you dear, as I have been battling chronic migraine disease for over 50 years. At 60, I can easily agree with each respone you've already received, but unfortunately it is suffered by millions, known so little about, and in most cases there's no cure. So, find a med that works for your system. With me, it must be aspirin-based NOT acetaminiphen - as are most migraine meds. Lifestyle, diet, triggers and causes (there are so many) all play a part. Moral support helps. Exercise, and, believe it or not, most of all at least for me, PETS are the best therapy clinic in the world. I have a Newfoundland migraine assistance service dog, for the ocular (retinal) migraines that take my vision and the vertigo which takes my balance. People don't see a visible ailment, so they ignore you, but your pets know you are not right. Pets lower your blood pressure and that in itself is a big help for stabilizing health in general. Hope we all have been able to open some avenues for you. Will keep you in my prayers. God Bless and take care.     Val and Bubbles + 4 cats too

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/8/2010 6:52 AM (GMT -7)   
Hey Ladyhawk, Welcome to healing well! I must say I agree with you 100% regarding pets. I don't know what I would do without ours. We have 3 dogs and 4 cats plus a stray cat who adopted us. He was in bad shape and me and my sis (Antbuggey) doctored him up for days and now he is doing great! I was able to forget my pain and issues I am having right now while taking care of him. Pets are the best therapy and they love us unconditionally and I know for this chronic pain lady, they bring light to my days of darkness! Brandy, are you getting any relief from the pain yet? Please update us. Take care all.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Mariposita
New Member


Date Joined Jul 2010
Total Posts : 16
   Posted 7/16/2010 4:35 PM (GMT -7)   
I am new to this website and have already found some peace of mind.  I have been thinking I was going crazy!  I can empathize with you.  I have had 3 terrible migraine like pain on the left side of my head and face preceeded by facial numbness and my tongue too goes numb in the last 4 weeks.  I was admitted to the hosp because the doctors thought it was a stroke.   But the MRI, CT, dipolars, echos and lab were all normal.  Except for my SED rate which I was told was 5 times above the normal.  Much of what you are experiencing, i too am going through.  Was on Topomax for 1 week, but it made me feel so bad with anxiety and bad thoughts.  Yesterday, I was placed on Vicodin and Lyrica.  I so hope to find some relief because even though the extreme pain has lessened, I still have the pressure feeling like my left side of the face is going to explode or implode.  I pray all of us can get some relief.  This has been very debilitating to work, play, do housework, drive and just be a wife/partner.  I hope you find relief soon.
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