Desperate Need for Advice and someone who understands. please.

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Migraine Sufferer
New Member

Date Joined Jul 2010
Total Posts : 1
   Posted 7/20/2010 1:49 PM (GMT -6)   
Ok so i am ayoung 18 year old and i've suffered from migraines since i was about 12, but i would only get them every six months or so. With my migraines i get, first of all flashes of light in my vision which makes it impossible for me to see, then pins and needles which start at my fingers and travel up even to the point of half of my toungue, and then i get sickness and the headache at the same time. this lasts for about 6 hours, but i usually feel abit ill and run down for about 24 hours after the migraine finishes. Recommendations like sitting in a darkquiet room, or going to sleep didnt really help me either, most of the time the pain is so bad if the room is quiet and dark would make no difference to if i was loud and bright, and i can only ever get to sleep once the pain and crying has warn me down enough that i have no energy left, the pain is too bad to just be able to sleep.
I could deal with this up until december 2009 when i got a migraine every day for a week, sometimes i'd have one in the morning and then wake up with one at 1am the next morning. The doctors prescribed me a preventative drug called Pitotifen which seemed to break them and everything went back to normal. but then at the begining of febuarary 2010 my mirgraines returned, again, once near enough every day, we went back to the doctor and he prescribed more Pizotifen but twice daily. im not on 0.5g in the morning and 1.5g at night.
A couple of days ago, i got another migraine. I really feel lost and i have no idea what to do. Im now in fear that my daily migraines will come back so im scared to eat anything and im paranoid, i keep imagining seeing the flashes in my eyes, im too scared to go out and do anything wioth my friends because i dont want to be stuck somewhere if i suddenly go blind in one eye. I feel totally powerless, i dont eat chocolate or have caffine, i take my tablets and yet i still get them.
No one i speak to seems to understand how it feels to be terrified of migraines because they are that painful, it would just help me to know that some people out there know how i feel and i'd just like to know if anyone had any advice at all at how to build my confidence back up and just to speak to someone who had the same condition would be a great help. Thanks.
ps. im sorry that this was so long winded, its a hard thing to try and explain.

Regular Member

Date Joined Jan 2010
Total Posts : 197
   Posted 7/21/2010 2:37 AM (GMT -6)   
So sorry to hear that you are going through this. While I can't relate to exactly to your symptoms, I can absolutely relate to the blinding pain, pins and needles, feeling sick, and being afraid to go anywhere and plan things because of the fear of having a migraine. Considering the fact that over the course of the first 2 months of this year, 29 days were spent flat out in a dark room with a migraine, the fears were not unfounded. Prior to seeing a neurologist who specializes in migraines in May of this year, I spent more than 6 months planning next to nothing. If someone asked me to do something, I told them I didn't know, I'd have to wait and see if I had a migraine that day, and that included telling my kids and my husband no to doing many things and sending them off on their own. I didn't go to movies because I was afraid I would get a migraine and have to leave, and that I would have wasted the money it cost to get into the movie. I was afraid to take a day trip with my family because it would be ruined if I got a migraine while we were gone. So I can completely relate to letting migraines control your life. The only reason I have a life back again is because the neurologist found a medication that helped my pain. I think without that, I would still be that wreck who didn't do anything because of the fear of getting a migraine. My life consisted of either about to get a migraine, having a migraine, or recovering from a migraine.

Have your doctors offered up another choice of preventive? Sometimes they can lose their effectiveness. Maybe this one is not working for you anymore. Make sure you talk to them about your fear as well. It sounds like they need to be treating you for some anxiety too. I hope you find something to help you, and I am sure there are others here who can relate as well to the pain and fears. Best of luck to you in finding help. You are definitely not alone!

Fibromyalgia, High BP, Migraines, anxiety
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

New Member

Date Joined Jul 2010
Total Posts : 16
   Posted 7/21/2010 11:00 PM (GMT -6)   
You are not alone.  I too suffer from migraines daily for the past 4 weeks.  The meds help to a degree and then the pain comes back paralyzing my left side of my face.  Do what your doctors tell you, but know you are not alone.  I am very new at this, but am looking into support groups in my town.  I agree, talking about it helps with the anxiety of the situation.  Every time I fell a little sharp pain at my temple I wonder if the migraine is coming back.  But I have found, that being on the computer too long triggers a headache but I have to go to work.  I wonder if a screen on the monitor would help.  Take care and know you are not alone.

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 7/24/2010 12:48 AM (GMT -6)   
It sounds like you should see a neurologist and perhaps be on preventive medication
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem

New Member

Date Joined Jul 2010
Total Posts : 4
   Posted 7/25/2010 6:40 PM (GMT -6)   
Hey my friend,

Your story gave me a new perspective on how bad this things can be. Please HANG IN THERE. :) You will beat it.

When you can, please post an update for us, have you seen any relief?

The only advice I can offer to you is no matter how scared and fearful you are, don't let it paralyze you, you must take action! I started getting migraines at 12 and I didn't really start to pursue help until my late 20's. I just simply hoped they would go away which of course they didn't.

Find a doctor you like and trust and continue to try new ideas. You will find the answer.

I get terrible migraines for about a month at a time every couple years. During the bout, they come and go every other day or so. Then they vanish for a long time. The last time they disappeared was the longest, but now they have returned.

I've tried Maxalt and Immitrex thus far... both 'kind of' work, but not really. And it's almost not worth it because they immobilize me so much, drowsy etc., that I can't do anything.

Stay strong, and I hope you are doing better.
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