On-going Hemiplegic migraines.

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New Member

Date Joined Jul 2010
Total Posts : 1
   Posted 7/20/2010 9:09 PM (GMT -6)   
My father(50) and I both have Hemiplegic migraines, as well as other members of my family. For those who don't know what a Hemiplegic migraine is, it's a migraine that resembles a stroke but do not cause permanent damage. Usually when my father and I have one, the migraine will last a day and be followed by several days of exhaustion.

Recently, however, my father had a migraine that was more intense than usual. The days following the symptoms continued so he went to the hospital and everyone feared it was an actual stroke. Tests were done and they found out it wasn't, thankfully. They continued with other tests, such as an MRI and MRA and found nothing.

However, for the past three weeks he's had reoccurring migraines. They're debilitating so he hasn't been able to go to work, or do much at all. The doctors and neurologists have given him several different kinds of medication and they aren't working.

So, I guess my question is if anyone else has had on-going, debilitating Hemiplegic migraines and what they were told to do, or did to stop them? Or just tell of your experience so that we know this has happened to others. Answers would be greatly appreciated.

New Member

Date Joined Jul 2010
Total Posts : 16
   Posted 7/21/2010 11:10 PM (GMT -6)   
You and your Dad are not alone.  I have been going through these headaches for the past 4 weeks.  Daily.  However, I got some relief on this past Saturday after going to a healing service at my church.  I know, it sounds silly, but it was amazing.  I fainted during the healing of hands and when I came to, the pain was gone!  The pressure was there but the pain was gone and even my crooked mouth was better.  Then Tuesday evening I went to the chiropractor and after he did the popping of my back and neck and shoulders, the pressure was gone too!  I was so happy.  I actually slept 8 hours last night - a first in weeks!  However, after today's session, I developed a slight headache, but that is all it has been for the past 4 hours.  I have not taken any pills.  I will take my usual pill before bed and pray the pain does not return.  Truly, I trust in God, and feel he is working in me now and that is why the pain has subsided.  Call it what you will - I found relief in Him.  But, you need to do what feels right for you.  Always have contact with your doctors and take your meds.  Things will get better for your Dad and you.  Take it one day at a time. 

Regular Member

Date Joined Jun 2010
Total Posts : 33
   Posted 7/23/2010 6:20 PM (GMT -6)   
Hi StopThinkFeel,

I have Right-sided hemiplegic migraines. I've had them for 3 years. Over the past 3 years there were 2 brief 6 month periods where I was almost symptom free. Then my headaches would be triggered usually by a medication adjustment by some inefficient doctor. Right now I have them daily.

For treatment options over the years I have used Neurontin 300mg ( A terrible drug, for me at least, awful side effects and withdrawal symptoms) Prednisone 60 mg (Oral), I have been hospitalized and had Solu-Medrol (methylprednisolone) 1000mg IV, I am currently on Topomax 200mg (which was working very well for me until doctors kept adjusting the medication despite my protest). As a result of the constant fiddling I needed to increase the Topamax dosage very quickly to get any effect. Pretty soon thereafter Topamax could no longer control my migraines like it used to and I was put on Calan SR 120mg(verapamil).

Calan Sr 120mg made a very slight but noticeable difference, but once again a doctor decided to fix what wasn't broken and any improvement that low dosage of Calan SR made was lost and I had to keep being bumped up to my current dose of 360 mg. Now I added Diamox 500mg (recently increased to 1000mg) & Nortriptyline 50mg to my preventatives. I also take Diclofenac Potassium 50mg as a Abortive. With all those medications added to my regimen I continue to have daily “headaches”, and don't work correction I CAN'T work.

The only thing that ever made me a moderate-highly functional hemiplegic migraineur were the Topamax 100mg and prednisone 60mg, because they reduced my symptoms to almost nil. (*Note: The prednisone stopped my symptoms the first time I used it however, the second time I tried it the Oral meds or IV route did not work).

I hope your dad makes some progress. Hang in there.

Regular Member

Date Joined Jan 2009
Total Posts : 55
   Posted 7/29/2010 8:57 AM (GMT -6)   
Hi Stop Think Feel!!!
I too have FHM, i have had them since June 2006 and that first 7 month before they new what was wrong with me i had attacks almost every day really bad onces
Often they could bee ongoing in 2 weeks without a day of relife and then 1 day off and the next day attack again, when they dignosed me i got Lamictal 200 mg
epilepsy med and that have done wonders for me, I only have some smaller one attacks per month now, ok well i can have really bad once too but not every month.
I no that we can have many weeks long attacks without any break, so...They just have too find the right kind of med that he responds at, sometimes that can take time
to, but beacuse we run a big risk to actually get a Stroke when we have the attacks, it is really important that we find something that can help minimize the attacks to a
lower level.

I really hope that they find one really soon that´s suitable for him!!!


New Member

Date Joined Aug 2010
Total Posts : 4
   Posted 8/2/2010 2:23 PM (GMT -6)   
I found out about a month ago that I had Hemipeligic Migraines.  I was hit in the head last Sept. and have had issues since. Some doctors have acted like I am crazy others think it's because I am female.  I did not have the stroke like problem until a month ago on my way to work.  I had acutally been getting better and felt better than I had since the accident.  This hit me out of the blue and now I have an episode almost everyday.  I have been in the hospital about 3 weeks ago they ran test and everything came out normal.  Is it normal to have 5 episodes in one day?  It looks like I may have to stop working until I can get a handle on this if that is possible.  Do any of you have somewhat of a normal life after getting this?  I feel like my life is on hold.  It has been very hard on my husband as well.  It is amazing to me how I can be normal talking to someone and then I can't move or talk it is usually my left side but today it has been on both my left and right sides, is this normal?  I can't find anyone to give me much info on this migraine I have found out the most through this website and your postings.  Thank you for any info you can give me.

Regular Member

Date Joined Jun 2010
Total Posts : 33
   Posted 8/2/2010 5:36 PM (GMT -6)   
HI SouthernWoman,

I'm sorry to hear about your situation. I can understand what you are going through. As I stated earlier in this thread I have had Right-sided hemiplegic migraines for 3 years ago now. My migraines I believe are genetic although I've never had any testing. When I first starting having symptoms I had every diagnosis in the book thrown at me: Multiple Sclerosis, some weird tropical diseases (I was in a foreign country for a short stay), seizure disorders etc. My symptoms range from eye twitching, facial pulling, tongue and mouth numbness, pins and needles of extremities, right sided body weakness or paralysis (when my headaches are severe), & a whole host of other symptoms. I have had combo of over 50 or more of these symptoms in a day when my migraines were really bad. I believe (not sure) I may have experienced some symptoms of numbness and burning on both sides of my body, but never weakness or paralysis. So it seems anything under the sun can be possible with these headaches, but you still have to check with a doctor to make sure nothing serious is going on.

I like you find most of my info through on-line articles and websites and those are pretty scarce. First I think you really should try to find a good migraine specialist if you don't have one already, they are more specialized than a general neurologist. You can research and find doctors who are migraine specialist by your state and city who may be covered by your health plan. They have the links on this site. I found my neurologist through the links in this website . He is a good physician and he is confident in his ability to treat me (We'll see :-) ). He knows about the disease, and has treated another patient before me successfully.

Also rely on as many people as you can, it's great you have a support system in your husband. But, don't feel guilty to rely on other people too much. That's something I'm dealing with right now. Hemiplegic migraines and the difficulty they bring can be very hard to deal with on your own or as a couple.

Wishing you the best,


Post Edited (HemiL) : 8/2/2010 5:09:02 PM (GMT-6)

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