I'm sorry to hear about
your situation. I can understand what you are going through. As I stated earlier in this thread I have had Right-sided hemiplegic migraines for 3 years ago now. My migraines I believe are genetic although I've never had any testing. When I first starting having symptoms I had every diagnosis in the book thrown at me: Multiple Sclerosis, some weird tropical diseases (I was in a foreign country for a short stay), seizure disorders etc. My symptoms range from eye twitching, facial pulling, tongue and mouth numbness, pins and needles of extremities, right sided body weakness or paralysis (when my headaches are severe), & a whole host of other symptoms. I have had combo of over 50 or more of these symptoms in a day when my migraines were really bad. I believe (not sure) I may have experienced some symptoms of numbness and burning on both sides of my body, but never weakness or paralysis. So it seems anything under the sun can be possible with these headaches, but you still have to check with a doctor to make sure nothing serious is going on.
I like you find most of my info through on-line articles and websites and those are pretty scarce. First I think you really should try to find a good migraine specialist if you don't have one already, they are more specialized than a general neurologist. You can research and find doctors who are migraine specialist by your state and city who may be covered by your health plan. They have the links on this site. I found my neurologist through the links in this website . He is a good physician and he is confident in his ability to treat me (We'll see
). He knows about
the disease, and has treated another patient before me successfully.
Also rely on as many people as you can, it's great you have a support system in your husband. But, don't feel guilty to rely on other people too much. That's something I'm dealing with right now. Hemiplegic migraines and the difficulty they bring can be very hard to deal with on your own or as a couple.
Wishing you the best,
Post Edited (HemiL) : 8/2/2010 5:09:02 PM (GMT-6)