I’m sorry I haven’t written you all back who have commented. Thank you for your kind words and inquiring about
how I am doing. I am here, stil hanging in there. My birthday was recently and I was very symptomatic and I had to go to the doctor on birthday so that was kind of a bummer ( I know what is that word from the 80s or something, My age is showing) Plus I did not receive many calls from friends or family, since I have isolated myself from people because of this illness. I don’t really know how I feel about
that. I am more forcused on my physical health right now, before I can even begin to think about
the emotional. Eventhough I know they are intertwined.
I came of the nortriptyline and I felt a little better emotionally , but migraine wise I was probably a tiny bit worse. Anyway, I am stronlgly considering getting a new neurologist. This doctor it seems has strong beliefs about
pain management regarding migraines/headaches. He refuses to budge no matter how much pain I tell him I am in. So our relationship will have to end. I spent many days in blinding pain, because he refused to give me stronger pain medication. I’m not asking for morphine or anything just something stronger than “tylenol”. I only stayed with him, because he has “treated” so he claims, Hemiplegic migraine patients before. So I felt a ray of hope hearing that.
But I should have seen the red flag when he told me I could go back and work in the condition I was in with daily migaines episodes. All I needed to according to him was to simply "Improve my healthy habits by drinking water, exercising (while paralysized on my right side)and eating 3 square meals a day.” That is the cure to hemiplegic migraines people. Sounds nice and simple right!
Not to be all cliché, but being ill has really changed my prespective on life and how I feel about
people, relationships, and just my whole outlook on life. I am truly a different person then I was 4 years ago before hemiplegic migraines entered my life. I hope this was not too soul baring. But if it was,……. hey!!!
Post Edited (HemiL) : 10/1/2011 7:04:33 AM (GMT-6)