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migraine every day for weeks

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Migraine Headache
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CanOpener
Regular Member
Joined : Jul 2010
Posts : 55
Posted 8/22/2010 8:02 PM (GMT -7)
I've gotten migraines since I was a kid. They've gotten more frequent as I've gotten older. They are associated with bright light, loud noise, and menstruation. I'm in my 50s now (still menstruating regularly) and twice I've seen auras - I never saw them when I was younger.

Recently I had to take Prednisone for another condition - Prednisone has a side effect of headache, and with me all headaches become migraines. During the week of my period I started getting migraines daily, which is usual for me. Except the migraines never stopped. I thought they might be rebound headaches from taking medication so I tried not taking it, and then I got... the pain is indescribable. You just want to DIE. These are not rebound headaches. I'm off the Prednisone now, but I'm still getting the migraines.

I don't know what to do anymore. I see a neurologist, but she doesn't specialize in migraine. I recently started taking Topomax to prevent migraine, but it doesn't work (I'm only up to 75mg). I am feeling desperate.

What in the world could cause daily migraines like this? It's been nearly a month now of a migraine almost every day. I think there has been only one day in there when I did not have to take rescue meds. What do I do????

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CanOpener
Regular Member
Joined : Jul 2010
Posts : 55
Posted 8/23/2010 6:38 AM (GMT -7)
I just found out that my neurologist does not accept my new insurance (Blue Cross Blue Shield) nor does anyone else in the Mt Sinai department of neurology. So on top of my other problems, I don't have a doctor.

 

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scentedshower
New Member
Joined : Aug 2010
Posts : 5
Posted 9/3/2010 5:09 PM (GMT -7)
I noticed that when I was on HRT patches that my migraines were very much improved.
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CanOpener
Regular Member
Joined : Jul 2010
Posts : 55
Posted 9/3/2010 6:38 PM (GMT -7)
Thanks for responding. I was feeling kind of lonely here.

HRT? Isn't that when you are going through menopause? I'm still menstruating every month so my body is making plenty of hormones. As I understand it, that is the problem. I've been told that when I go through menopause (if it ever happens - I'm already in my 50s and have never missed a period), that the migraines may go away. My mother's didn't, but she took hormones. I thought that kept her in migraines, so I'm confused why they would fix yours. Did you get menstrual migraines before? Or maybe I don't know what you mean by HRT.

In any case, 100mg of Topomax is helping. I still get migraines right before my period and sometimes during, but the frequency is much less now. I got three migraines during my last period - two prior and one during - but otherwise I've been fine. I just wasn't taking a high enough dose before.

I've also found that sinus irrigation helps. I have allergies, and also there appears to be black mold in my air conditioner, which also can cause headaches (my headaches always become migraines). As soon as the hot weather is over, I'm having the AC cleaned. I called and they said they can get the black mold out.

I found a migraine specialist, but have to wait until October for an appointment.

 

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CanOpener
Regular Member
Joined : Jul 2010
Posts : 55
Posted 9/22/2010 12:36 PM (GMT -7)
I surely hope that no one falls for that scam posting from havehopeplz. I have reported it to the admin.

I am now migraine free with 100mg per day of Topomax, which is available generically so costs me just $5 with my insurance.

 

Post Edited (canope) : 9/22/2010 1:40:23 PM (GMT-6)

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SmurfyShadow
Veteran Member
Joined : Dec 2008
Posts : 2386
Posted 9/22/2010 3:32 PM (GMT -7)
You said it happens right before and during menstration? Have a ob/gyn check you out hon. It sounds definately menstrual related.
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CanOpener
Regular Member
Joined : Jul 2010
Posts : 55
Posted 9/22/2010 4:03 PM (GMT -7)
Menstrual migraines are pretty common. My mother had them, too.

I have an appointment with the New York Headache Center in October and I just filled out their 10-page questionnaire. They had a whole section about menstrual migraines.

 

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