Hi! I was having terrible migraines that had pretty much made my life a living hell. I have been on topiramate since May. I am on 125mg/daily. I started at 25 mg per week, and went up in 25mg increments. Any side effects I have dealt with have been well worth it, and minor when compared to the pain relief this medication has afforded me. My dose was adjusted slowly enough that any side effects were pretty minor, and I could become accustomed to them. I have the standard tingling in hands and feet, but it comes and goes and lasts only a few minutes at a time and for me is completely bearable. Soda tastes flat and terrible, so I don't drink that anymore. No great loss there. I have lost a little weight, but not a ton. I noticed most of the appetite suppression when my dosage was increased, and then it leveled out. I am down from daily migraines and needing at least 8-10 maxalt per month to 1 maxalt in the past 8 weeks. For me, this has been a miracle medication.
Everyone handles medication differently, so no one can tell you if it will work for you. But when you are in agony, don't be scared off by what you read about the side effects. I read them all as well, and if I had allowed them to influence me, I would still be living most of my life in a dark room with an ice pack slapped over my head, unable to take care of my family. You never know until you try. :)
Best wishes, and I hope that if you decide to give it a try, it is as successful for you as it has been for me!
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin