Ann, thanks for responding, and also you have my fullest sympathy for your condition Hermicrania Continua - that sounds just awful, and kinda puts my condition into a bit of perspective!!
I have been diagnosed some 20 years ago as being a migraine sufferer, and as I said previously, have spent alot of time with docs and a few neurologist appointments also (scans etc). However, I've not specifically asked for a "headache specialist" when asking my GP to refer me for consultation - perhaps I will now - thanks for that. My previous neurology appointments did not last very long at all - again, simply told "you're a sufferer, continue with your GP's medication!" Frustrating!
Re your comment on "clusters" I do realise that there is the "cluster headache" condition which is a different beast, but I'm not sure how else to explain the pattern of the migraines occuring in their frequency and in a confined time.....and then disappearing?! If anyone knows of the a proper terminology here, I'd be glad to hear of it?
Re my symptoms, they are generally very consistant, and I don't experience the watering/drooping eye which you mention. Basically, I have med's stashed everywhere so that when I feel the onset of one (aura) I get some pills into me asap, as if I don't my headache and nausea are unbearable! Generally my aura can last for 3/4 - 2 hours, almost always starting as a small blind spot in the centre of my vision which enlarges into an arc of jagged flashing electrical looking lights, which works its way into my peripheral vision, and then out of sight (generally the attacks alternate to either side of my vision - no specific "one" side for all attacks). As the aura disappears the headache kicks-in very quickly unless I have taken med quickly enough, followed approx 1-2 hours later by nausea. I have experienced pins and needles down my arms in isolated cases. The effects stay with me for anything up to 48 hrs, with the first 12-24 spent attempting to arrest the headache pain - the nausea, when it does occur, generally passes after about 2 hours. The trouble I'm having with the frequency of the attacks is that they have been occuring in about 48-72 hr cycles when they come in their "clusters", leaving no time at all from recovery of previous!! Aaaahhhhhh!! I think the person who comes up with a cure for these god-forsaken things should be knighted..... immediately!!!