new here, curious about other peoples experience with zomig

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protell
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/4/2011 6:01 AM (GMT -6)   
Greetings all,
I'm new here, looking to share some experiences with other migraine sufferers. I've had migraines since i was young kid, but when i got to my 20s they really started getting worse. My doctor had me try a few different drugs that didn't do anything, then i tried zomig which worked really well for me. The problem was, my allotted 10/month wasn't enough. my doctor told me about rebound headaches and said i should not be using zomig so much, so he started me on different preventative drugs, none of which seemed to help at all. Since my insurance would not pay for more zomig, i started biting my 5mg tablets in half when i needed to take one, i found that 95% of the time half a pill worked just as good as a whole one. Does anyone else do this?

I really REALLY hate being dependent on such an expensive drug, and would love to figure out how to prevent the migraines altogether if possible. I have isolated a few foods that are triggers, and sometimes taking 4 advil or smoking pot can help stop a migraine if i take them right at the onset of one, does anyone here ever do that?

I recently read that going to a chiropractor could help, has anyone here ever tried that? Or is that just a scam?

A few years ago i started keeping a journal with all the migraines and zomig or whatever remedies fixed it, and it seems like it is getting better, but probably only because i have learned to avoid certain triggers. Has anyone here ever heard of migraine sufferers stopping having migraines, or am i most likely going to be afflicted with this for the rest of my life?

I guess i am just looking for new ideas of what to do... i am so frustrated confused shakehead

foodnag
Regular Member


Date Joined Jan 2011
Total Posts : 37
   Posted 1/4/2011 1:23 PM (GMT -6)   
Hi there...I'm also new to this forum, and my story sounds very similar to yours! Except I didn't have much success with Zomig. I've found that sumatriptan has been less effective for me. I was convinced that it was due to the generic form being less effective, but i'm starting to think that our bodies just change over time and maybe become less sensitive to a drug? I don't know!

Have you tried other PRN medications other than Zomig? Perhaps you MD could give you some samples to see if you respond to some other others that may be less expensive (i.e generic sumatriptan etc.). Also, how long did you try to preventative meds? I use them, and it did take a while to find the "sweet spot" dose where it was decreasing the intensity/frequency of the headaches but not giving my the stoopids. It's very frustrating, and there are definitely times when it's just depressing :-( I've found that after a bad attack I actually feel depressed for a couple days, it's awful.

I too have found some food triggers, citrus, avocado, certain nuts, MSG, aged cheese, nitrites (I pretty much avoid processed meats altogether...they aren't good for you anyhow!). And of course alcohol, but I don't always avoid that ;-)

Maybe a sleep study? If you have risk factors for sleep apnea I'd say go ahead and ask your doc about it, especially if you get morning headaches.

I'm curious also about if they will ever go away...I really don't want to live with this forever. I've just had a bout of kidney stones this past summer due to the preventative meds. Between the impact on my personal and work life, plus all the financial stress of all those medical expenses I can't handle that happening all the time.

I feel your pain.

protell
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/4/2011 10:04 PM (GMT -6)   
foodnag said...
Hi there...I'm also new to this forum, and my story sounds very similar to yours! Except I didn't have much success with Zomig. I've found that sumatriptan has been less effective for me. I was convinced that it was due to the generic form being less effective, but i'm starting to think that our bodies just change over time and maybe become less sensitive to a drug? I don't know!

Have you tried other PRN medications other than Zomig? Perhaps you MD could give you some samples to see if you respond to some other others that may be less expensive (i.e generic sumatriptan etc.). Also, how long did you try to preventative meds? I use them, and it did take a while to find the "sweet spot" dose where it was decreasing the intensity/frequency of the headaches but not giving my the stoopids. It's very frustrating, and there are definitely times when it's just depressing :-( I've found that after a bad attack I actually feel depressed for a couple days, it's awful.

I too have found some food triggers, citrus, avocado, certain nuts, MSG, aged cheese, nitrites (I pretty much avoid processed meats altogether...they aren't good for you anyhow!). And of course alcohol, but I don't always avoid that ;-)

Maybe a sleep study? If you have risk factors for sleep apnea I'd say go ahead and ask your doc about it, especially if you get morning headaches.

I'm curious also about if they will ever go away...I really don't want to live with this forever. I've just had a bout of kidney stones this past summer due to the preventative meds. Between the impact on my personal and work life, plus all the financial stress of all those medical expenses I can't handle that happening all the time.

I feel your pain.


Wow, thanks very much for your reply!

I probably haven't given the preventative meds enough of a chance, i just really hated the way they made me feel. I could literally feel my IQ dropping when i was taking topamax... I have tried taking other drugs, but triptan drugs seem to be the only ones that ever work. Is there any generic versions of any triptan drugs?

It's interesting which triggers you mentioned, those are almost all spot-on exactly the same triggers I have, especially MSG and nitrates. Some are worse than others. Last month i tried a no-dairy-december to see if that would help, but there are so many factors in causing a migraine that it was hard to tell.

I recently noticed that doing exercises every day has helped. I can't overdo it or I will get dehydrated and that will trigger one, but enough to get my heart rate up for an extended period does seem to help.

My doctor said he think i have a "hypersensitive central nervous system" but I feel like such a whiney little baby, always having to be careful about what I eat and drink, how much sleep I get, not too much stress or exercise. My wife sometimes jokingly makes fun of me for being such a "pansy". But if I can lessen the migraines, then I don't care what people think of me. It's just so frustrating that my life revolves around this constant fear of pain...

It's really nice though to hear that there are other people going through the same thing I am, I just hope someday modern science will find the "cure" for all this...

Thanks again for your heartfelt reply!

foodnag
Regular Member


Date Joined Jan 2011
Total Posts : 37
   Posted 1/5/2011 11:25 AM (GMT -6)   
HA my husband (as truly caring as he is) teases me too! I FEEL like a pansy sometimes, wishing that I could just get my life back. Quit having to regulate my life so much around my headaches. You know what I mean based on your reply. It's almost like me and the pain in my head have our own little intimate relationship that no one else can understand, and I hate it, but I do find myself considering it before most other things when making a decision. ARGH!

Anyhow, yes, those are common food triggers for a lot of people. I've done quite a lot of research and have done elimination diet on myself (one by one) to test each one of them. I'm actually a nutrition counselor so I suppose it came second nature to try the natural route first :-)

Exercise helps me too, I walk/run and do light weight training about 2-3 times/week, and then do hot yoga also. This is also GREAT for stress management. I got away from this for a couple weeks when I had surgery and I could definitely tell the difference!

Lastly, I would say give the preventatives another try. drugs like topamax do make you feel stupid for a while, but that side effect should go away after a couple months. Unless of course you are on a dose that it too high. Make sure you are going to a good specialist! Like i said, I was on 150mg for a while and I was REALLY dumb, had major word finding problems, would just stare into space sometimes, was always tired. But on a 100mg dose (split in 50mg doses twice daily) I don't have that.

And yes, there is a generic triptan...imitrex went generic as sumatriptan a couple years ago I believe. I don't know of any other available yet? anyone else?

Hope this helps!
Eat food. Not too much. Mostly Plants. -Michael Pollan

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 1/7/2011 2:56 PM (GMT -6)   
One more thing I forgot to mention. When you take medication for migraines, they say to give it two to three months to judge its effectiveness. Botox is similar. You have to have 2-4 rounds of injections before you can decide whether or not it works for you.

Good luck!
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