Help with life destroying Migraines

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John B
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/12/2011 8:59 AM (GMT -6)   
Hi, I just signed up for this forum this morning praying thier may be somebody that can guide me in a direction that a slew of Doctors and Specialists could not in the last 3 decades.
 
My name is John, a 32 year old white male. I have suffered from severe migraines since the age of 4. Doctors back in the early 80's just put me on pain medications, and told my parents I would likely grow out of the problem. Well I have aged almost 30 years since the very first migraine, and have grown to a whopping 6'5" 250 pounds.... yet I still suffer from migraines. At times these migraines cause me to lose days or weeks from my life. They are so bad that when one is in full swing, I have often considered suicide just to end the immense overwhelming crippling pain.
 
I have had every test under the sun in the last 3 decades, and have tried enough different medications to stock an entire pharmacy. These migraines usually start in the back of my neck, and wind up with fierce stabbing pain behind one or both of my eyes. At times that can become so severe that I cannot even stand on my own power. I get a bright purple-ish cloud in front of my eyes with the really bad ones. In recent years, maybe since mid 2009, my migraines have added another unwelcome symptom... confusion.
 
During the really severe migraines I now suffer with a varying level of confusion. Sometimes I try to speak, having what I want to say clear in my mind, but when I turn that thought into speach the words come out wrong. I often say bizarre things not even knowing I have said it. For instance- someone will ask me if I feel any better, and I will reply something like "the vegtables are driving busses".
 
This new unwelcome symptom prompted me to once again to subject myself to a slew of tests. One of those tests was once again another MRI. This is the first MRI I have ever had that showed anything near abnormal- this time they found an increased T1 signal that can be associated with several different ailments, but the specialist said it was likely unrelated and nothing serious to worry about.  
 
These migraines are hurting my career, my marriage, and takes me away from my children for days at a time. It consumes every aspect of my life. I really can't stand this pain anymore. I would never willingly end my own life, but sometimes when the pain becomes so severe the level of rational thought is reduced to almost none at all, and I worry what I could be capable of during these episodes of confusion.
 
If anyone else has a similar story, and has found ways to reduce this pain, please, please, please, please HELP ME!
Thanks so much! 

Twizzler
New Member


Date Joined Jan 2011
Total Posts : 3
   Posted 1/12/2011 10:09 AM (GMT -6)   
I joined the forum last night. I can relate to your pain. Yesterday, the thought of suicide entered my mind, which is scary.

I took an Axert and Tramadol last night, and it is a little better today. I also bought some L-Thianine, which I think helped as well. I also drank a Magnesium Oxide from the healthfood store.

I have an appointment with a Chinese doctor that specializes in accupuncture today. I'll let you know how that goes.

In the meantime, I am staying out of the bright sunshine, which just kills me. I also put a cold compress on my forehead.

My daughter is getting married next month and I am just so anxious that this will pop up then, and that would be terrible.

Twizzler
New Member


Date Joined Jan 2011
Total Posts : 3
   Posted 1/12/2011 10:11 AM (GMT -6)   
Sorry, that drink is Magnesium Carbonate. I think it calms me down. I have also heard that migraines can be triggered by a Magnesium deficiency.

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 1/12/2011 10:55 AM (GMT -6)   
Are you in the U.S. John (ie no crazy long waitlists)? If so, if I were you, this is what I would do: I would see a general neurologist who is also an epileptologist. Do I think you have epilepsy? No, I absolutely do not. But sometimes in a situation like yours (ie slightly abnormal MRI), it is good to get an opinion from someone who A) thinks a little differently than a headache specialist B) sees a lot of MRI's C) is a specialist (i.e. has the drive and intellect to pursue a fellowship).

Now with that said, assuming everything does in fact check out as being ok, I would get myself into a migraine clinic/center. Your symptoms sound like classical migraine, but If I were you I would definitely want to be screened (by a specialist) for cluster migraines (or other more uncommon migraine types). Once you have a more definitive and specific diagnosis, you can get treatment that is better suited for you.

Best of luck!

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 1/12/2011 11:09 AM (GMT -6)   
John,

If you do have thoughts of ending your life, you need to call a suicide hotline. These people are trained to deal with these kinds of feelings.

As someone who has suffered with migraines for a long time, I would be lying if I said I hadn't had the same thoughts. Many of us chronic pain suffers do. But remember, you have children. Think of them. It would be terrible for them to grow up without a father. It would be inexcusable.

You need to tell your doctor about these thoughts. Many of us migraine suffers are also on antidepressants. We are on them for two reasons 1) our migraines and/or meds make us depressed 2) through unrelated mechanisms, these meds help our migraines.

Hang in there!

wonderfulKate
New Member


Date Joined Jan 2011
Total Posts : 10
   Posted 1/26/2011 5:54 AM (GMT -6)   
PLEASE PLEASE PLEASE STOP THINKING OF SUICIDE AND TRY TO THINK POSITIVE. !!!;):):)

I have suffered with migrain, SEVERE migrain for 15 yearsm in the last 2 years every day and night, no rest, no life. You know how it feels.
Please try something i tried, stummbled accross it by pure chance, on internet studies, through research and people commenting. All positive comments, all positive results!
in my case i havent had A SINGLE MIGRAIN since i started taking the hormone melatonin. It is natural and is safe. From what i know at least. I studied responces from different countries in different languages (me being russian)- ALL POSITIVE and after all I TRIED IT and the pain IS GONE. I'd like to help by this comment if i can to those who will experience similar results if they only try. It is cheap, can be bought on internet, nature shops. Please dont give up on your life, i hope it will get better for you too...
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