I am usually over at the Lyme Disease forum, but my concerns for my daughter have brought me here to ask a few questions. Thank yo in advance for any ideas, thoughts, tips - or any other type of help- that anyone can offer.
My daughter is just months away from turning 26 years old, but has had serious headaches for almost her entire life. She has been diagnosed with "Chronic Daily Headaches" as well as Migraines.
She has described (to me) her chronic daily headaches as being not at her sinuses, the only constant about
them is that there is a knot in the center of her brain. Sometimes the pain will also be behind her ear, or at the very crown of her head, or from the temples up, or she can experience a band of pain form one ear over the top of her head to the other ear in a 1 to 1 1/2 inch wide path.
As for her migraines, she has told me that they go back & forth - with & without aura. Sometimes unilateral, sometimes bilateral. If bilateral she has a lot of nausea, photophobia (light sensitivity - in case I used the wrong term) and she has difficulty with getting 'stuck' focusing on one thing, or one object.
This scares me as I have experienced some small seizures myself & believe that when she has the symptoms of getting her focus 'stuck' like that, she is experiencing a small seizure.
The medications she has been on so far; Imitrex, Relipax, Maxalt (worked but gave her a terrible hangover effect), and one other one that she couldn't remember the name other than it started with a "V" or a "Z".
Right now, from my understanding, she is taking Daypro helps some with the migraines and she just started on Nortriptiline (20 mgs.) at bedtime for her dailies. She is under the care of a Neuro for now at the Veterans Hospital where she works.
She has had these daily headaches since she was very young and her migraines started in during the **** or very early teen years. It's now been about
15 years of this for her - it breaks my heart, but I could only make
her go to a doc when she was living at home still.
As I said - any
suggestions, hints or observations are welcome!!
Co-Moderator, Lyme Disease ;)
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.
I break my posts up so that I can read them easier. I have neuro LD & the print actually dances around if the paragraphs are very long. Thank you for understanding.