Hope I am doing the right thing....

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jpjax
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Date Joined Dec 2010
Total Posts : 52
   Posted 1/27/2011 3:22 PM (GMT -7)   
rolleyes  Hi ,
 
Sounds like so many things the rest of us are suffering with.
Just so tired of docs looking as though, "Oh I do believe it's in your head that's for sure"
I let my Neurologist go today for just not being a little more energetic in helping me as they collect their 360.00 fee.
Tension headahes was the dx about 6 months ago and I have done everything they asked.
Meds, but aot I won't take.........(heart attack last year so I am leary of many of the drugs they want me to try)
I have my script for Amitryptiline (SP?), Restoril sleeping pills, which I probably won't take.  WILD side effects from what I see on line.  Have some Fioricet with caffeine and without, Xanax, Tramadol, Librax and some Motrin 800
My appt with the new Neuro is on Feb 2. Went by the old one today and asked them to fax my records over and I was able to get my MRI disk.  They want $1.00 per page to copy my records.  Mind you, their charge per visit is 368.00....Hope I am doing the right thing..feels like starting all over again.  Thanks for letting me ramble on.
I am not crazy, just a little unwell.

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 1/27/2011 5:50 PM (GMT -7)   
Hi JP,

Sorry to hear you're having a difficult run of it. Crappy neurologists are not fun and are certainly frustrating. Keep searching for a good neuro. I would suggest making an appointment at a Headache clinic/center.

How long have you been on the amitryptaline? If it's a new script, was your neuro aware you had a heart attack recently. If not, you should definitely make him/her aware of this before starting on the med.

You're certainly right to be weary of meds, given your heart. There are so many meds out there that are safe for you to take though. Don't give up!

jpjax
Regular Member


Date Joined Dec 2010
Total Posts : 52
   Posted 1/29/2011 1:46 PM (GMT -7)   
Thanks EvilF
Meds to take with a heart condition...that is what I am hearing from a lot of people.
I don't have much experience and am so skeptical about some of the meds.
Are there any suggestions about meds that I might be able to bring up with the new doc when I go this Tues?
thanks all help is appreciated.
It's been 6 months and I am no better than the first day.
:(
ps
I have not taken the Amityp...as yet
I was going to take one tonight since it's Sat night.
25mg.
Maybe I should just hold off.
I am taking L Theanine and 5HTP at bedtime to get some sleep....only 4 hrs but it's a help.
The old neuro prescribed Restoril sleeping pills but I don't think those are even worth it.
I read that people are "sleep driving" and other things that they have no recall about....
Who needs that crap?
Thanks!
 
I am not crazy, just a little unwell.

Post Edited (jpjax) : 1/29/2011 1:50:22 PM (GMT-7)


EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 1/29/2011 4:30 PM (GMT -7)   
I certainly don't want to tell you what to do, because I am not a health care professional. But, If I were in your shoes I would hold off on taking the amitryptaline (AMT) until you see your new doctor. AMT is known to cause heart arythmias in some people. When you get up to higher doses (say... 100 mg and above) they like to take semi-frequent EKG's to make sure your heart is handling the drug well. I don't want to scare you off completely. AMT can be a life saver. I'm on a related med in the same class.

BTW, 25mgs seems like a high does to start on. Usually, you will start off on 10mg to avoid being overly sedated. They'll titrate up stepwise in 10 mg increments until you reach 50-75mg.

There are some really effective heart (BP) meds that they prescribe for migraine. These include beta blockers (e.g. propranolol and metprolol) and calcium channel blockers (e.g. verapamil). Propranolol is a first line migraine preventative med.

I would think that many of the anti-epilepsy drugs would also be safe. Ask your new doctor about this.

It may be a good idea to take a team based approach to treatment. Have your neuro keep in contact with your cardiologist, so that you are getting treatment that is both effective and safe. If you feel that your new neuro isn't doing his/her job well you can always make an appointment with a headache specialist.

Best of luck with the Tues appt.!

jpjax
Regular Member


Date Joined Dec 2010
Total Posts : 52
   Posted 1/29/2011 4:53 PM (GMT -7)   
Thank you so very much Evil.
I will take your advice as you sound like you have more experience than me.
I am on Metoprolol, Simvastin, Linsinopril and Plavix ( the small pill that costs 172.00 per month for 30)!!!!
I am going to bring a letter with me and some questions as well.
The neurologist I am seeing has headaches as a specialty so maybe he will be able to help.
I really appreciate the time and consideration you show.
I am just fighting some pressure and pain as I type this.
I took 1 L Theanine and 1 500mg Excedrin Tension Headache tablet.
It's the stinging pain all over my scalp that is really getting to me.
I guess I can split a Xanax .5mg tonight.
That would be only the 3rd time I took one since getting the script in Sep.
I def do not want to have any more problems. Just wish things could go back before Aug 14 when this all started.
I woud be one happy Camper!
Hope all is well with you...sorry for not asking sooner!!!!!!
I am not crazy, just a little unwell.

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 1/29/2011 10:03 PM (GMT -7)   
I'm happy to help out in any way I can. Migraines are not fun at all.

In all fairness to your old neuro, s/he was probably thinking that you're on a beta blocker (metoprolol) and an ace inhibitor (linsinopril) and you still have migraines; why not try a different class of meds. Amytriptaline can help with pain, anxiety, depression and help you to get a good nights sleep. It can be a great med!

But given you're heart history it's better to be safe than sorry. It's very possible that the (relatively low) migraine dose won't pose a problem for your heart. See what your new neuro (and cardiologist) has to say.

I'm glad you're seeing a headache specialist (is that his/her specialty or is that one of the conditions s/he treats?). A good headache specialist will ask that you keep a headache journal. This is very important. It will help you to identify and eliminate your migraine triggers (e.g. specific foods, sounds, lighting types, sleep patterns, etc).

I see you're on simvastin, a statin. Statins have been known to cause muscle cramping/pains. The theory is that it lessens your body's ability to "properly use" CoQ10. Talk to you're doctor about supplementing with CoQ10 (or maybe even the "activated" form, ubiquinol).

I would ask your doctor about taking supplements in addition to your meds. Some people find magnesium, CoQ10, feverfew (I might be weary of this one since you are already on the antiplatlet drug plavix) , butterbur (petadolex), vitamin B2, etc. to be helpful. Again it is very important that you clear this with your health care provider given all your meds. You have to be careful about interactions.

With all the meds your on and the reason your taking them, a team based approach is a great way to go. Your cardiologist should be on board with all of your meds. Sorry for repeating myself, but it's important.

I know the feeling of wanting to go back in time before everything started. All I can say is look forward and fight to find a solution to your M's. I'm glad to hear that your going to the doctor with questions in hand. We are ultimately responsible for our own health and there can be no bigger advocate for yourself than you.

Thanks for asking about my migraines. Like everyone else here, I'm taking it one day at a time and actively working to find solutions for my migraines.

Best of Luck!

Post Edited (EvilFluorescents) : 1/29/2011 11:19:35 PM (GMT-7)


jpjax
Regular Member


Date Joined Dec 2010
Total Posts : 52
   Posted 1/30/2011 5:07 PM (GMT -7)   
Thanks.
Am hopeful there is something we can try.
I will at least get some anwers on preventative meds that I am ready to take.
if it helps get through and lets me get back to work....gotta pay for all this somehow!
Will post more once I have the appt.
 
 
I am not crazy, just a little unwell.

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 1/30/2011 9:17 PM (GMT -7)   
I can hear you're in pain, so I'll keep this short. Its repeating part of what I posted above.

Ask your doctor about your statin heart med and migraines. Ask about supplementing with CoQ10 (or ubiquinol).

It may be helpful (it may not), but it's worth a shot.

Good luck!

jpjax
Regular Member


Date Joined Dec 2010
Total Posts : 52
   Posted 1/31/2011 3:41 PM (GMT -7)   
I will go over these with the new doc as well as with my cardiologist.
I have already asked about magnesium and he had no problem with that.
I have taken CQ10 since i am on simivastatin and it's track record is terrible.
Aside from a daily vitamin, B12 under the tongue, i take L Theanine for sleep...it really helps!
Will post more towards week end if there is news from the appt.
Thank you very much!
 
 

jpjax
Regular Member


Date Joined Dec 2010
Total Posts : 52
   Posted 2/14/2011 8:57 AM (GMT -7)   
I had my appt with the new Neurologist and will post later today.
All in all, it went well but still need some advice.
Am leaving to go to work........YES I am back at work. Part time for now....but its a start
Will post later this evening.
I am not crazy, just a little unwell.

jpjax
Regular Member


Date Joined Dec 2010
Total Posts : 52
   Posted 2/15/2011 5:54 AM (GMT -7)   
Had my appointment on the 2nd and really like the new doc. We went over the MRI in detail and she told me there is nothing going on with my brain. The real problems are with my neck and the herniated disks.  There are 3 of them. the closest one to the top of my spine is the worst.
What I am experiencing are nerve- tension headaches.  She also told me I am caught up in a cycle of pain, anxiety. depression that keeps things going up and down. She gave me a script of Amitryptiline, 10 mg to take.  There is a slow upgrade to the amount each night. But she did tell me it does take a bit for my body to get used to it.  So far, it has been better. 
 
I still have the anxiety about everything connected with these headaches:  money, health insurance costs, keeping my job..etc.
I have been on FMLA since 2 Dec and worked some...mostly part time hours, a very flexible schedule, thanks to a great supervisor.  But even while at work and my attempts to make things better and as normal as I can, there is always something keeping me from being able to just dismiss the strange feelings in my head.
 
The doc told me there are other options and I feel comfortable with her.
At least this doctor explains things to me in a way I can understand.  I told her about my fears of heavy drugs since I have a heart condition.  She said we can start low on the amitrypt and see how that works.  At the same time, she ordered my med records from my GP to check out my last EKG. 
 
She told me about the success she has seen with some patients using Botox.....but this is something my insurance will not pay for unless documented that it is needed as part of my healing.  Yes, Blue Cross Blue Shield.
 
I am now having issues with my abdomen and pain in the left quadrant.
I have had bouts with diverticulitis, infected lymph nodes in the groin...and after a number of rounds of antibiotics, still having some pain.  My gastro doc ordered another CT scan but I hope any pray it's not something more.
 
I try and keep positive and tell myself I am doing the best I can.
I try not to anquish over the job when I can not go in.  People at work just think I had a breakdown.  My depression and anxiety attacks were pretty obvious in January. 
I know I can't get disability and since I turn 62 in Aug, I can't put in for retirement for another 10 months. 
 
There are days when I can't manage to get out of bed when my head is tingling and the nerve pain is all over the top and sides...that I just want to rip my scalp off. Hard to describe but I know there are others with the same thing happening to them. 
 
I am open to taking whatever medication I have to take that will allow me to function as best as I can.  I am looking forward to my next appointment with the new Neuro doc.  Just hoping that my stomach issues are soon resolved...the pain is tolerable but still need to know what it's from.  Gastro doc gave me Synmax Duotab to take and it seems to help.
 
Sorry to have gone on and on.  
 
Just wanted to give an update to my last posts.
I always look forward to hearing from others in the forum... I know I don't have it as bad as some others.  Wish we could all just wake up one morning and everything painful would be gone.  How great it would be just to have no pain, no anxiety, no depression and self confidence that it's going to be alright!!!!
yeah
 

Post Edited (jpjax) : 2/15/2011 6:14:39 AM (GMT-7)


EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 2/16/2011 11:53 AM (GMT -7)   
That's fantastic that you found a doctor who is supportive and who you can work with!

Congrats on getting back to the job! That's wonderful.

Did the neuro mention anything about consulting with a orthopedic surgeon to address the herniated discs. A simple course prednisone and of physical therapy may be immensely helpful.

Best of luck!

jpjax
Regular Member


Date Joined Dec 2010
Total Posts : 52
   Posted 2/16/2011 2:11 PM (GMT -7)   
I do have my next appt on the 2nd of March and will ask her.
I know she did say "we have other options" available.
Just seems like she is more in tune with what my symptoms are and did not reach for her pad right off.
We discussed the amitryp. first and then she decided on a low dose to start out with and wants to see my last EKG.
That tells me this is a concerned professional.
My CT scan is tomorrow so I am hoping that goes well and that finally someone can tell what it is.
I am so sure it's not diverticulitis..the pain is different but I could be wrong.
Just want to get off these antibiotics as the amitryp is making groggy enough.
 
idea  
I am not crazy, just a little unwell.

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 2/16/2011 2:39 PM (GMT -7)   
Again that's fantastic. It sounds like you found one of the rare jewels who is thoughtful and takes a "whole person approach" to treatment.

It's also nice that you were able to narrow down the cause of the headache. The body really is an exquisitely complex and interconnected machine.

Do ask about the herniated discs and treatment for it. If they do decide on a corticosteroid (prednisone) treatment, make sure your infections are cleared up and all the doctors are onboard (the prednisone has immunosuppressive properties).

I've been there. Yeah the amitryptaline can be a little tough at first, but it's usually something the body adjusts to.

Sounds like everything is falling into place!

Best of luck

Post Edited (EvilFluorescents) : 2/16/2011 2:42:40 PM (GMT-7)

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