HemiL here I have Hemiplegic migraines too. July 2011 is my 4th year anniversary of sorts. Sorry to hear about
all you're going through. That episode sounded really scary. I don't know if that is a hemiplegic migraine only a doctor can confirm that of course, if you are not satisfied or convinced with what is being said please seek a second opinion. I can't count how many doctors I saw before I finally received a diagnosis of hemplegic mgiraine. I am sure there are many people on this site who can say the same. They may also recommend,like I am about
to, that you seek out a headache specialist if you haven't already done so.
I will say your symptoms sound a lot like mine. I have right sided numbness with pins and needless that spread to my mouth and face and my speech becomes garbled or slurred. I sometimes have right sided paralysis when my migraine are very bad, as well as other symptoms that affect my hearing, walking, breathing, etc,
Right now I take 360 mg of Verapamil. When first took Verapmail I noticed an improvement in my headaches and had my doctor bump up my medication to 240mg. I eventually had to go to a higher dose. I also take Topamax 200mg. I experience side effects as well (weight loss, loss of appetite visual disturbances). But I will say that is been the only medication, when it did work, that took away my migraines & hemplegic symptoms completely. I have yet to try more medications since I still experience daily Hemplegic episodes.
In addition these to medications I use Diclofenac POTASSIUM 50mg every 6 hrs, as an abortive. I find this drug helps with mild to moderate migraines. It does not work on severe migraine pain for me. Along with these medications I have tried some others preventative medications. *Hopefully one of them will work for you or someone else.
Neurontin 300mg (On this medication for 3 months and gained 30lbs) withdrawal symptoms were the worst I have ever experienced) the drug helped with neuropathic pain. It did nothing for the numbness, facial pulling, weakness, etc
Diamox 1000mg (approx. 6 months caused visual disturbances, dehydration) it had minimal impact on my migraines in my opinion. Maybe it will work for someone
Namenda 50mg (approx 10 days (caused drastic mood changes) had no impact on my migraines or symptoms. I take a number of other medications so maybe that could have been a drug interaction.
Amitriptyline 50mg (used it for approx 6 months caused) no effect on migraines
Nortiptyline 50 mg (took it for approx 10 months caused weight gain ) minimal impact on hemplegic migraines and symptoms.
Some of the Abortives:
Execedrin (Rebound Headache city)
Relafen and Flubiprofen, These two were not as effective for me because of the dosage times. They were so that I could not take them often enough.
I also tried Tramadol a weaker narcotic my neurologist does not want me taking narcotics because of his of narcotics and their association with rebound headaches but when these headaches get going really bad, which isn't that often, then boo him. I have some narcs that I have for another condition and I just have to take them because I refuse to sit and be in pain for anyone's theories. No matter how right they are. Also there is a drug interaction between tramadol and verapamil sooo.
I take supplements Magnesium, B2, Melatonin, C0Q10 enzyme
You mentioned Migrelief I hurried and looked it up to see if I could try it. After some research I read it contains Magnesium, Riboflavin and Puracol Feverfew( That ingredient I am little weary of because I've read it may cause rebound headaches. This is something I do not need. Have you heard of Butterbur. This is something after some looking into I am going to give it a go. Of course ask your doctor first before taking these supplements for allergy risk, potential drug interactions, etc, etc
Keep in touch,
Post Edited (HemiL) : 2/26/2011 5:26:16 PM (GMT-7)