I've been a lurker here for some time. Finally took the plunge and decided to post.
I'm having a terrible morning and need some support from people who understand what I'm going through.
I was diagnosed with pseudotumor cerebri 10 years ago at Mayo. I'm on a number of medications that help with it and was giving Midrin with good results. Now that Midrin is no longer made, I feel like I'm back at square one. So far, I'm not finding much success with other medications, and, as my doctor says, "there is nothing else like it."
I'm really struggling today with a brain buster of a headache, along with nausea, and I'm feeling so alone. A bit panicky. Anxious. And very tired of living with pain.
Help. I need support today. I've found that my family and friends are less understanding and supportive as time goes by. In fact, I know that I've lost friends over having this disease. I have a wonderful husband and one child. Love them dearly and feel terrible for being a burden to them.
Anyone have some wisdom to help me get through today? I feel so alone.