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Veteran Member

Date Joined Aug 2005
Total Posts : 617
   Posted 3/9/2011 4:35 AM (GMT -6)   
I haven't been around for a while, but I thought I should drop in and update y'all on the amazing (although not perfect) improvement in my migraines/headache situation.  Just to recap, I've had migraines for 37 years, since I was 8 years old, and have had them treated since I was 12.  They have been chronic for the past 10 years, and I haven't been able to work a regular job in about 8 years.  I've been on SSDI for 6 years for multiple issues, including chronic migraines.
Anyway, up until the last year, I was having migraines 3-4 days a week, and keeping a lower-grade headache on the days when the migraines weren't full-blown.  My migraines were common, no aura, mostly brought on by changes in weather/temp/environmental conditions.  I tried and failed on every type of medication out there.  I had CT scans, MRIs , regular X-rays, you name the test, I took it with nothing weird showing up.  I went thru neurologists left and right.  Nothing ever helped.  Basically, I was miserable.
SO....WHAT DID WORK???  OK...I ended up at the DUKE UNIVERSITY PAIN MGMT CLINIC.  Wonderful people willing to try things others might not thing about...  I'm taking a combination of ZONEGRAN(Zonisimide)400mg/day (as a Preventative) and SEROQUEL -300mg & HYDROXIZINE -50mg (as an Abortive) when I get a migraine.  Basically, the idea with the off-label use on the abortive medications is that they put me to sleep and I sleep off the migraine.  I don't get as many migraines now, and when I do, the meds usually do the trick. 
I used to have to seek treatment at the Emergency Room several times a month.  I've only been one time in the last year.  Now I just have to get an minor injection of Nubain/Phenergan every couple of weeks, which is a vast improvement.  I also have gotten rid of the permanent headache that I had every day.  I can't tell you what a RELIEF it is NOT to have your head hurt ALL THE TIME.  I thank my lucky stars I pursued the DUKE Clinic because I saw where someone in this forum recommended it.  Thought I would just pass along my experience for what it's worth.
Leigh Ann
•On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems
•Divorced, 45, spawn-free


Regular Member

Date Joined Jan 2011
Total Posts : 224
   Posted 3/9/2011 1:04 PM (GMT -6)   
Wow, that is fantastic. Congratulations!

And you're using the seroquel as an abortive, not a preventative? That's really interesting.

Thanks for letting us know!
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