crazy constant head pressure

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godheals
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Date Joined Mar 2011
Total Posts : 41
   Posted 3/19/2011 4:42 PM (GMT -6)   
hi,
I'm new to the sight.  Don't know what the selection in colors means for the messages so i didn't choose one.  about the last week of feb. I got what i thought to be a headache that just wouldn't go away.  Nothing I took would take it away.  Until now I have never had a headache that has lasted longer than one day.  Never had a migraine either.  Then 15 days ago I was hit hard with the worst pressure I had ever felt in my life.  It was the worst on my left side and i thought I was having a stroke or something.  For 5 days i was confined to my bed and was panicking the whole time.  Everyone was telling me it was a migraine.  The pressure has not gone away, it is just not confining me to my bed.  Now i am just confined to my house.  I have been to accupuncture twice, got two proffessional messages, and saw two docs. and went to the ER once.  I now have a referral to a neoro. but i am waiting for ins. to kick in.  I am gonna see the chiro. mon.  I have one question for all of you out there cuz everything I have tried for pain has only made it worse.  Everything over the counter and the morphine they gave me at the ER (that was hell).  Has anyone had the same thing occur?  Pain meds. making your symptoms worse?  I havn't been able to find relief at all.  Lying down makes it worse and sleeping is almost impossible.  The pressure makes my ears hurt too and jaw.  I feel really sad in moments cuz i have a 5, 4, and 2 yr. old to take care of but it's so hard with this pressure. My  husband has to work a lot so im on my own a lot.  I feel like it's not safe to drive too.
Love to everyone out there
bri

Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 3/19/2011 10:30 PM (GMT -6)   
I have a similar problem, and have had it every day for 7 years.  Mine doesn't sound half as bad as yours, though, and typically there is no actual pain involved.  You can check out some other posts of mine that discuss the issue.  The most recent thread about it is called "Topamax and poly-drug use" here in this very forum.

sunnie1133
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Date Joined Mar 2011
Total Posts : 8
   Posted 3/20/2011 7:43 PM (GMT -6)   
Do you hear your heartbeat in your ears?  Any nausea?  Vision problems?  Headache, pressure, ear pain, and worsening with laying down can be a sign of intracranial hypertension.  Get an eye exam and ask them to look for papilledema (swelling of optic nerve).  Can also be diagnosed with a lumbar puncture.  Something to rule out. Good luck.

wickedcrazy
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Date Joined Mar 2011
Total Posts : 40
   Posted 3/20/2011 10:14 PM (GMT -6)   
Hi, I have had that same type of what I thought was a migraine for forever and come to find out I have cervical spinal issues and will require surgery before I can return to work. Have they done a head/neck mri with the er visits? It may be more comfortable to sleep on your stomache or with your head not on a pillow and possibly hanging back alittle bit (if on your back). Pain meds may only make a true migraine rebound and side effects to consider. I'd go to the er again, if need be and ask for head /neck mri-tell them all your symptoms. Have you had head/neck trauma recently (car accident...)? Take care, I wish you best! Hang in there!! Amy

godheals
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Date Joined Mar 2011
Total Posts : 41
   Posted 3/25/2011 3:25 PM (GMT -6)   
hey thanx everybody,
No they did not do an mri although i thought they should have.  No lumbar puncture yet either and i really dont want to get one.  I dont have insurance but am applying.  have not been diagnosed so im safe on the pre existing condition.  I did however find a whole world of facsinating info. on cranial adjustments.  I found a doc. who uses a meridian stress test (electic scan) to pin point the problem and reverse it.  I think everyone should research this and read testemonies about it.  People with pressure behind their eyes, losing sight, completely healed.  people with many different conditions that meds or surgery could not help or fix have been completely reversed.  I have had some trauma to my neck and head so i know that could have a lot to do with whats going on.  I have an app. wed. with that doc. who speacializes in cranium adjustments so i will let u know if i take the scan and what the outcome is.
thank you and i am praying for all of us
bri

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 3/25/2011 5:01 PM (GMT -6)   
"Lying down makes it worse and sleeping is almost impossible."

Hi Bri,

whickedcrazy is right. The description you gave almost screams cerebrospinal (CS) issue. It could be alignment related or, more likely, it is related to pressure of the CS fluid. When you do see a neuro or your chiro, mention the symptoms. They may want to order a head/neck mri or full back/neck ct and/or spinal tap. I'm confident this will help you to narrow down what is at play.

Best of luck!

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 3/26/2011 6:24 PM (GMT -6)   
hey everyone,
I do agree with all of you, there are a million things that it could be, a lot of which are quite scary.  I am praying that this chiro. specializing in the bio cranial adjustments can help because I don't want to go through horrible tests and take awful meds.  I have mostly become a holistic person so i try to do things natural if i can.  Everyone out there who has done every kind of test and tried every kind of med. out there but still has symptoms should really research the meridian stress test ( you have nothin to lose at that point right?). There is some conroversy (of course) with the cranial adjustments but i feel that is true for everything.  I have been searching really hard to find negative testimonies from people and i cant find any, google searching and u tube.  The meridian stress test has been used in other countries for over 35 years.  I care about all of you out there..... I really do.  I want us all to find an answer and a remedy.  I am blessed to have found a community of people who care for each other.  If this route does not work than I will go to the neuro. : (.
Love Bri
P.S. for anyone who would like to read a couple promises from a God who cannot lie and is the same yesterday, today, and forever.
psalm 34: 17-20 and psalm 103: 1-5

Travis_Nobilis77
Regular Member


Date Joined Aug 2006
Total Posts : 23
   Posted 3/28/2011 2:11 AM (GMT -6)   
Sunnie1133,
I just had a question for you: I do and have had ear sounds on the opposite side of the headache for years now (like a purring sound), whereas I can hear my pulse strongly on the side of the headache, the left side. Sometimes the mid cerebral artery (I think) which runs through the back-center of the head throbs so hard I can feel it just below the bone in the back of my head. It seems it is worse when I lie down. Too, when I am lying down, if I give in to it, often I can feel my whole head AND upper body literally move back and forth with every pulse.
This syndrome has been going on all my adult life, though, 35 years plus last time i counted. And had transformed or exacerbated 10 years ago to now include the back of the head sometimes in the PM---and increased intensity of pain. I had had several spinal taps throughout my long history, the last one being back in 2002, I believe. (That was just at the start of the exacerbated headache).
Do u think I should be checked more thoroughly for this intracranial hypertension, as from the get-go I have always had tremendous pressure behind my left eye, with all the above symptoms? What are some of the sure-fire tests for diagnosing intracranial hypertension, and what are the best drugs for treating it?
Thanks a mil for input, Sunnie.

sunnie1133
New Member


Date Joined Mar 2011
Total Posts : 8
   Posted 3/28/2011 7:01 PM (GMT -6)   
travis - intracranial hypertension (formerly called pseudotumor cerebri) is caused by increased CSF pressure.  it can be idiopathic or secondary to trauma, disease, or medication.  the main symptoms are headache, papilledema, visual disturbances, vision loss, pulsile tinnitus (hearing your pulse or 'whoosing' sounds in your ears), eye pain, and nausea.  most people report that their symptoms are worse laying down (my headaches are worse laying down). it is diagnosed by exclusion of neurological damage or tumor (negative MRI, MRA, etc.).  the majority of those with IH have papilledema (swelling of optic nerve) which can be seen during an eye exam.  the diagnosis is made by measuring the opening pressure of CSF during a lumbar puncture (CSF fluid is also tested to rule out meningitis).  normal opening pressure is 10-20, anything above that is considered IH.  typical patients are female, overweight, and in their 30's although it has been diagnosed in children and men, it is much more rare.  it can be a chronic condition but is managed with medication (generally diuertics such as Diamox and Lasix), serial lumbar punctures, and/or shunt surgery.
while you have some of the symptoms, you are not in the typical patient category and do not report visual problems. have the eye doctor or neurologist check for papilledema next time you go. maybe they need to do an MRA to look at the blood vessels in your head. best way to diagnose is opening pressure reading during an LP. good luck.

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 4/3/2011 2:55 PM (GMT -6)   
Hey everyone,
So i went to that chiro. guy and we did the scan.  Don't have full results until this wed.  He did do one of those cranial adjustments on me and it ended up flairing my neck prob.  so now my head and my neck hurt.  The neck issue always gets better but my head is still a mystery.  So now i will never know if cranial adjustments would work for me since i cannot do them due to my neck.  He wants to take x-ray's on my neck to see what the issue is there.  I will however go to see a neuro. now.  I would really like to here if someone out there has experienced the issue that i have with trying to take ib profen or tylonal to help with the pressure and it getting worse instantly.  Like i said before, even the morphene at the er made it instantly worse.  This is very scary for me because pain med. should make things temporarily better, not worse.  I worry that in the future i may need pain med. for something else and not be able to take it cuz of my head.  What could this be?  Anyone have any thoughts? Oh, I had an eye exam and everything checked out normal.  No pressure (papilleodema). Thanx
Brianna

Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 4/3/2011 10:32 PM (GMT -6)   
dear god heals,
 
I saw your post in my other thread, I thought I'd reply here, although I don't have much to add.  I'm certainly not very knowledgeable, only knowing bits and pieces about different subjects.  I mostly just have my own experience to talk about with any kind of certainty.
 
I also have head pressure 24/7, however mine seems to have much less intensity than yours; it looks like yours is in an "acute" phase... hopefully you can get that down to a tolerable level soon.  I also don't experience pain with the pressure, at least not often.  about your question, the only thing I've ever really tried for the head pressure is tylenol, and it doesn't seem to do anything (doesn't make it worse, or better.)  I can't take NSAIDS due to allergy or intolerance.  I've never used pain meds because I don't get pain with my pressure.  I really feel for your situation, but unfortunately I don't think I can be of much help.

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 4/5/2011 3:00 AM (GMT -6)   
Hey thanx for the response batman : )
I know my issue is probably the first of its kind (typical for me) lol.  How are your meds. treating you?  I read about all the ones your doc. prescribed you. Sounds tricky... I hope they help you.  7 years is a long time!  I'm only on 32 days and I feel it is tooooo long.  I just tried flexeril (muscle relaxer), different from everything else I have tried but it has had the same effect.  Now it is 2am and I can't sleep cuz of the pressure and my heart feels like it's racing.  My brain feels really awake..... so very weird.  Lot's of misfire in my brain huh?
Hope you are doing well
Brianna  

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 4/5/2011 7:39 PM (GMT -6)   
OMG so guess what,
Got a call from the pharmicist today.  They gave me the wrong prescription!!!! I was supposed to get flexiril (muscle relaxer) and got vyvanse (an amphedimene)....sorry if i spelled that wrong.   I have been up all night and all day with a racing heart and intense pressure in my head.  Even though things have had the opposite affect on me, i knew a muscle relaxer would not be that bad and last that long.  There is another costumer with my exact same name and they switched our meds.  Check and double check your prescriptions!!!!!! make sure your b-day and address match... Oh and don't be like me and not check the name of the drug to be sure.  i am seriously hating life today

Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 4/5/2011 10:02 PM (GMT -6)   
That's utterly shocking that you got an amphetamine instead of a muscle relaxant.  That pharmacy needs to rework a few things.
 
about the plan my neurologist had for me, I decided to be a wimp and not go forward with it.  Every source I have indicates that Topamax is a heavy-duty drug and I'm concerned about specific side effects, for me the risk-benefit ratio just doesn't seem worth it.  That's just how I see it--I tend to be very conservative about medication these days, after my brother developed epilepsy at 32 years old.  That does leave me uncertain as to what other treatment the neurologist can offer me--as most drugs that prevent chronic headache are just as potent as Topamax, if not moreso.

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 4/7/2011 10:51 PM (GMT -6)   
Hey,
 I totally understand your decision to not go foward with your meds. I myself am not looking foward to going down that path.  Have you tried holistic things yet like accupuncture,  or message? Have you read the amazing benefits of taking flaxeed and taking fish oil?  All very powerful, natural choices.
I hope you can find a solution.  I have found in my life that prayer is the best medicine.  Your answer may not come as fast as you may like it to but it does come.  I will be praying for you, I hope you don't mind.
Brianna  

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 6/6/2011 7:42 PM (GMT -6)   
Hey Batman,
I'm wondering how the topomax is going?  Has it helped yet?  I hope it has
Brianna

Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 6/6/2011 10:55 PM (GMT -6)   
I've been on the 75mg dose of Topamax for 4 days now.  Unfortunately I haven't been able to detect any genuine relief yet.  There have been a couple "moments" in the last few days--periods of 2 or 3 minutes--where the pressure was absent at times when I might normally have it, but those could easily be placebo or just natural variation of intensity.  It could also be possible that Topamax might have something to do with those "moments" but I can't prove it.

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 6/6/2011 11:36 PM (GMT -6)   
Well that's a start.  Hopefully it will end up working for you. 
Do you have any crazy side effects or are you handling the meds well?  
I'm really nervous... I get the results of my bloodwork and MRI in 3 days.  I have however gotten to that place where it's more tolerable.  I can leave my house and make it through the day.  It's much easier to take care of my kids and responsiblities.  It still sucks though, but I am thankful it's not as severe as it was in the beggining.  I hope you continue to improve...
Brianna

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 7/12/2011 6:19 PM (GMT -6)   
OMG!!!!!!!!!!!!!!!!
I just want to scream!!!  Sorry..... so I tried topomax and could only stay on it for 3 days!!!!  It also made my head worse!!!!! What the hell is wrong with me!!!! Does anyone have any ideas?????  Anyone????  Everything, everything, everything makes my head worse!!!!!  Why is there nothing that helps just a little??? I would even take things that just didn't make it worse, how about that? It doesn't have to help just don't make it worse.  I am starting to feel like the only solution is a shot to the head!  That would help for sure.  I can't take this anymore and it's only been 5 months for me.  I don't know how you guys have survived years.  I seriously just want to be with God now cuz this is rediculous.  I am trying to hang in there cuz I know God heals.  I have experienced it first hand..... twice in my life.  Doctors could not figure it out, I lived in pain every second and even after docs figured it out they still couldn't do anything.  It was an inflammatory disease of the bladder that was incurable 5 years ago.  It's like having a severe bladder infection FOREVER... but god healed me. Then I had surgery and it came back.  I fasted and prayed ferverently and in two weeks it vanished again.  He is amazing.  I know what He can do so I try to stay focused on that but it never gets easier with each new thing.  This has been really hard.
 

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 7/13/2011 4:08 PM (GMT -6)   
Also has anyone out there had any luck with the botox injections?  My neuro wants to refer me to a headache clinic and says i should probably do the botox.  That is just crazy but what the hell, it can either work or kill me.  either way is good with me lol

JackStraw
Regular Member


Date Joined Jun 2011
Total Posts : 21
   Posted 7/13/2011 5:52 PM (GMT -6)   
Godheals,

I am so sorry you are in such misery. I have had a daily headache for 19 months now. Unless I missed it, I don't see that you posted the results of your MRI. You saw a Nuerologist? Did you get a diagnosis?

I have Hemicrania Continua. Constant pain of varying degrees on the top right front quadrant of my head.

JS

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 7/14/2011 8:59 AM (GMT -6)   
Hi JS,
Yes I got results and they are actually posted on another thread (topomax and poly-drug use).  I have a lot of conversation on that one.  My MRI, CT scan, and blood work all came back normal..... my neuro is referring me to a headache clinic now.  This doesn't really feel like a headache tho.  It just feels like someone filled my head with air until it's about to pop.  Sometimes I have headache pain on top of that which I can only take naproxen for.   For some reason it's the only thing that doesn't make the pressure part worse.  My pressure gets worse with increased activity so I can't do to much in a day and I certainly can't work out anymore, which I used to do 4-5 times a week.  Everything has made my head worse, it's pretty scary.
Thanx for your response.
bri.

JackStraw
Regular Member


Date Joined Jun 2011
Total Posts : 21
   Posted 7/14/2011 7:14 PM (GMT -6)   
Brianna, seems a diagnosis has eluded your Neuro. I really hope a HA specialist can nail one down for you. Is the pressure one sided or all over. Any sinus issues? I am interested in your case and I really feel for you. Hang in there. Please keep posting. You really need a diagnosis. I hope you get to see a good doc.

I could easily refer to mine as pressure but it waxes and wanes with intensity and gets worse as the day progresses. When it's really exacerbating, it feels like a boring, searing sensation. Not nice. I am trying Indomethacin for the 3rd time. This time along with Nexium to curtail the gastric side effects. I am slowly titrating up. 25mg for 5 days and have been on 50mg fora couple of days now. Will continue to escalate dose as needed and as tolerated. The therapeutic Indocin dose for HC can range up in the 200-300mg range. That is scary.

Have you tried Melatonin? I stopped taking it 2 weeks ago and I took 10mg of it last night. Tonight I did not get my 8pm hard hit like I have for the last many nights. My HA has been raging every night since I stopped the Melatonin. There is no other explanation for the lack of severe pain tonight. I've been dealing with this for 19 months and I am still learning.

Today spoke with a very reputable cluster headache sufferer on the phone. He suffered with a severe case for 25 years. He estimated that, in that 25 time period, he endured 18,000 debilitating attacks! We talked about a few things but Topamax came up. He said it will make you forget where you live. I agree with him, that many of the drugs these doctors prescribe have no effect or may even make things worse. I would never tell someone who is suffering not to take a drug....I'm just saying. He took well over 75 different drugs in those 25 years. Please do your home work.

I'm no expert by any means. I have taken several drugs myself. Only Indocin right now. Also I take Fish Oil, 10,000IU Vitamin D3, and Calcium Citrate. You may want to consider these. A blood test for vitamin levels may be a good idea as well. Could be an issue of not absorbing vitamins from the foods we eat.

I have rambled enough. Hang in there and demand a diagnosis.

Pain free wishes.

JS

godheals
Regular Member


Date Joined Mar 2011
Total Posts : 41
   Posted 7/14/2011 8:48 PM (GMT -6)   
Hi there,
Thank you so much for your interest.  It's great to have someone who actually says they are interested in what's happening to me.  My pressure is everywhere and it also worsens as the day progresses.  I have never had allergies or sinus issues in the past and I don't think I do now.  There is a tiny spot on the bridge of my nose that feels bruised a little ever since this happened and I have also had a lump in my throat feeling too.  I do think it is purely neurological though because I had a pretty bad head injury 5 weeks before this happened and I was perfectly healthy before this.  I never had a headache in my life.  I really think that's what started all of this. 
I have tried melitonin and it made my head feel worse....believe it or not I had a harder time sleeping when I took it.  I am in such a panic sometimes because everything, literally everything has made it worse.  I can't even take vitamins.  So what is going on with the cluster headache guy now?  Is he any better these days?  Has anything ever made you feel any better?  You said your trying a med for the third time, did it help a little the first two times or do you just hope it works this time with the addition of the other med?  Thank you for sharing your story with me.  I also wish you pain free days : )
 
Brianna
 

JackStraw
Regular Member


Date Joined Jun 2011
Total Posts : 21
   Posted 7/14/2011 9:13 PM (GMT -6)   
Yes it does sound like it could be related to your injury. Seems the Nuero could have found this but maybe not. Getting a dx (diagnosis) may be difficult but so crucial. Do you live in a large metropolitan area or a more rural area. Just wonder what type of docs you may have access to.

I could not tolerate the gastric side effects of Indocin although it did relive my HA. Based on my symptoms and the fact that Indocin was effective, Hemicrania Continua (HC) is the dx. I was never on it long enough to get full benefit but this time I hope to.

The cluster guy broke the 25 year cycle by ingesting 1.4 grams of psilocybin mushrooms. He did this 2 or 3 times one week aprart and his schedule cycle never came. He now does a maintenance dose twice per year to prevent his 2 times per year cycle. I'm not suggesting you try this, it is illegal and may not be the pathway for you. You need a dx.

Cluster Headache (CH) and HC are in the same family just so you know. It's the indolence ring hallucinogens that are at work here. I may get kicked off this board for mentioning this but what the hell. I opened the door for it on purpose.

Again, you need a dx. Please don't go picking shrooms from your yard. They may just kill you.

Bedtime.

Keep posting.

JS
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