Topamax nearly ruined my life.
I was the happiest person and full of life. My marriage was great and thank God I had such a huge support system.
I had a head injury, followed by a concussion, and was given Topamax to help with the headaches during my post concussion syndrome. I started getting all of the adverse effects. I was losing consciousness, staring spells, body shakes, weight loss, scattered mind worsening, memory loss worsening, terrible anxiety, and nearly every single side effect listed down to my bladder giving me issues(which she insisted I had a bladder infection). My doctor insisted I keep taking the medication. I started having these "non-epileptic seizures". They soon labeled me as having psychiatric issues and she (And other doctors) insisted that I get help for my mental state.
I continued to keep having, what they labeled as "episodes". I was in and out of the hospital bc they became so terrible. I was losing my memories, my mind, and completely out of control with my body.
If it weren't for my husband's determination in telling them how I was before the medication then I'd probably not even be alive today.
After doing research and seeing other stories similar to my own I decided that I wasn't the crazy one. It was the medication making me sick and not my brain injury. My husband researched vitamin supplements to decrease the inflammation from my head injury and I quit Topamax. It was the hardest 3 days of withdrawal.
I felt like my brain was on fire. Like an electrical storm that wouldn't stop.
After those few days I started coming back around. 2 weeks later and I was the old me again!
No one listened. They still insist that I should seek help with my mental state and people still look at me like I had a mental breakdown. It's hard to talk about
bc it was a dark time. I've never been a down person and always smiling and enjoying life. It was a constant, "you must just be so stressed and depressed."
Not even close. It was discouraging to hear people's reactions.
When you forget your own kids faces and no one wants to listen or help you, and treats you like you're "crazy" you lose faith in the healthcare system all together.
It's been months and I still have issues with my memory and headaches but hopefully it's just the lingering of the concussion.
Post Edited (Heatherw88) : 8/1/2018 1:01:17 AM (GMT-6)