chronic headaches

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myofacialfybro
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/14/2011 1:38 AM (GMT -7)   
My headaches started out of the blue: Sudden, intense pain, no likely psychological reasons. It lasted for six months, 24/7. I got maybe one hour of sleep per day in whole six month period. I went to Dr., hospital, neurologist, dentist, chiropractor, eye doctor. Nothing touched it, including fentanyl patch. Finally Doc prescribed lyrica, a fibromyagia medication. Stopped it in it's tracks. Headache care specialist hypothasized that it originally started as a bleeder in brain, then went on to develop into myofacial pain syndrome and fibromyalgia. Headaches started up again a year or so ago. It IS myofacial pain syndrome/fibro. I still take 150 mg. of lyrica daily, increased dosage didn't seem to help this time. Note: I never had bad side effects from lyrica. Now I have to take, in addition to lyrica and 30 mg. of methadone for pain management, hydrocodone and soma, which the combination does relieve the headaches. But only for a while. But it's better than no relief at all. I am going to ask Doc to switch the hydrocodone with tylenol to just plain hydrocodone because the tylenol is really affecting my liver and kidneys. So hopefully this will help anyone out there suffering like I do.

sarula
New Member


Date Joined Mar 2011
Total Posts : 11
   Posted 4/19/2011 6:04 PM (GMT -7)   
hi, sry for your pain, i too have horrible migraine/ tension headaches and just everyday annoying headaches. It took many yrs to be diagnosed with myfascial pain syndrome, and i also have been on soma, lorocets, and methodone, what the problem with pain meds is that yer body becomes used to them, and they seem to stop having the same result. I take cymbalta also for my fibro, and klonepin. They need to try to prevent your headaches before they start by trying antideppressants, triptilyns, and etc. My Pain management doctor just put me on feurocet, it is used to help prevent the headaches. I also take maxalt, and giv myself imitrex injections once i get a severe migraine, which are usually started by tension or stress, thats where the klonepin comes in, its similar to valum, but does relax muscles. I got addicted to soma, it was the only med that ever gave me a boost of energy when taken with lorecet. so i'm glad i'm not on it anymore. I have Chronic fatigue syndrome, and i'm sick alot, and have no energy, but i get triggerpoint injections for my myofascial pain syndrome, they r very helpful, and u just get used to the needles, i don't even flinch, i'm so used to them. unfortunatly i'm not on anything for pain, only injections. my doc says becuz my pain is chronic and I'll never get better he will not prescribe narcotics. he has tried morphine, didn't work, and methadone didn't do anything at all. i would suggest getting off of the meth. I would just seek different opinions, and dif docs.
wish u the best
Danielle 

samantha0629
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/22/2011 3:41 PM (GMT -7)   
I feel the same way although I always have sinus issues..as of right now my sinuses are so clogged I feel like my head is going to explode!! I have had CAT scan done and everything was normal...but horrible headaches interfere with daily life..i lose sleep, i can't work or anything. Severe headaches are indeed disabling..i have found that hot tea with wildflower honey in it and being wrapped up in a blanket with your head propped on a pillow helps relieve some head and neck tension..i hope you find relief soon!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 4/28/2011 3:52 PM (GMT -7)   
So sorry for all your pain but i can certainly understand and sympathize with you.

I have had temporal headaches now for ten years so you know i have tried it all

out there. Docs, injections of triigger points, nerve blocks, botox, all kinds of meds

and currently weaning off of methadone as that did not work either, done my forms of treatments,

natural pain clinic, tests, etc etc. So it all sounds like your stories. I use ice on my head to get

some relief. I have been on disability for two and a half years and have just lost my job

as a nurse. How did the dr. come to the conclusion that your headaches were

myofacial pain . I don't know if anyone has anything i have not tried.

Until then I go one dat at a time.

suzane
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