For Those Who Have Had to Stop Working

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jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 4/24/2011 6:28 PM (GMT -7)   
Have spent the last few days mostly in tears. Because my migraines are now
daily I have had to cut way down on my involvement in my business and have
turned over day to day operations to my partner. The lack of a daily
routine, a reason to get out of the house has left me feeling like I have no
purpose. What do you do to try and stay connected with the outside world?
And when stuck at home what do you do that helps keep you sane? Leslie

leelo
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/24/2011 7:50 PM (GMT -7)   
i just have a question and Ive been suffering for about two month of and on about this pressure on my temple and on the back of my eye ball this pressure is stealing my joy and happiness i do get frustrated cause of it,please help

tryn2gtbtr
Regular Member


Date Joined Apr 2011
Total Posts : 76
   Posted 5/2/2011 11:56 PM (GMT -7)   
cool  HeIy jewishmother, my name under the forum is mazel tov. Just wanted to tell how sorry i am for you, luckily i've only had a few migraines in my life I have an autoimmune disease called polymyositis.It's been a real ruff ride for me this past year and half. But keeping my fingers crossed that i may be heading into remission. But just wanted to let you know that i heard that botox actually helps with migrains.Just something i heard never had it so maybe you could bring it up with your doctor??????Just throwing it out there. I can't imagine the daily pain you must have to indure.How about this other med i was on neurotin. perhaps that could also help?????? I do know what it feels like to not want to get up and get on the wheel of life, but what keeps me going are my children and grandson. I am your true jewish mother although my dad was jewish and my mom catholic. I was lucky because i got to see both sides of the coin.But i did inherit my jewish grandmothers mothering, feeding feeding and more feeding my family. It gave me such great solace to be able to take care of my family. And now it's all changed.Hang in there your not alone there are alot of us out there who are suffering and this forum has already made me feel emotionally well. wishing you alot of happy days. take care and hang in there. wink Susan

NY Veggie
Regular Member


Date Joined Apr 2011
Total Posts : 280
   Posted 5/19/2011 2:32 AM (GMT -7)   
Please don't give up trying to get help for your headaches.. go and see a good neurologist who specializes in headaches
I too had my own business but unfortunately I had to give it up because of my headaches and depression
I just started on gabapentin a month or so ago and although I am still getting headaches they are nowhere what they were 10 years ago
I also have fiorinals that help with the pain and relax my neck, and a beta blocker to prevent them

Getting out is soooo hard when you aren't well.. and after a big migraine I need a whole day just to recoup.. It is soooo exhausting!!!
Eventually you should find a balance.. get a good doc and get some good meds

NY VEGGIE
Brain Aneurysn FIXED, Crohn's, Migraines, Fibromyalgia, Hypothyroid, Polychondritis, Pericarditis, Depression
Lacto-Vegetarian Low-Residue Diet,
Solgar V-75, Gentle Iron, Calcium, Vit D, Flaxseed Oil, B2, Biotin, B12 shot, Turmeric
Pentasa, Metaprolol, Gabapentin, Synthroid, Protonex, Plavix, ASPIRIN, Flexerol, Zocor, Xanax, Fiorinal
Was on Entocort, INH, Prednisone, Prednisolone, Cipro, Flagyl

Monahan
New Member


Date Joined May 2011
Total Posts : 3
   Posted 5/19/2011 4:04 PM (GMT -7)   
Hi - I am new to this site. I wanted to give everyone hope. I suffered from a migraine, every day, for 2 full years. I was suicidal. The pain never stopped. I went to every neurologist in San Francisco (Robertson, Goadsby (head of neurology at UCSF), Nagy (former head of neurology at UCSF), head of neurology at UCLA, and head of neurology at Stanford). I tried every drug (immitrex, frova, migranal et al, Topamax, amitryptaline, xanax, klonopin, propranolol, the list goes on, etc.). Goadsby, Stanford neurology head and Diamond Clinic all recommended that I do a hospitalization first to get off all the medications (was taking about 5-6 different meds daily), and then do an IV drip of DHE for a week. I scheduled this appointment, but cancelled and scheduled several times because I was terrified.

I started seeing an acpuncturist (yes, I had done acpuncture before, and it didn't work, so I didn't think this would either. However, someone told me this particular acpuncturist was something truly incredible). Well, I am happy to say that, I am migraine free. HOWEVER, it has taken me a full year, and it's been a lot of work. This is what I have done (no silver bullet or quick fix or gimmick here):

1. OBVIOUSLY no caffeine, alcohol of any kind (but I am sure you guys all know this).
2. NOT SO OBVIOUS - no sugar of any kind, except an occasional piece of fruit (no dried fruits, and no candy, ice cream, yogurt, etc.)
3. NOT SO OBVIOUS - no dairy of any kind.
4. NOT SO OBVIOUS - no movie theater popcorn - this is filled with some really bad chemicals that your liver cannot process - migraines can stem from your liver not being able to process things like sugar, alcohol, chemicals.

Those were the easy things. HOWEVER that is not at all the whole story. Then there is treatment.

1. acupuncture EVERY DAY - yes EVERY DAY. I have an arrangement with my acupuncturist and I see her at night around 8:30pm after my 3 small children are put to bed. Also, not just any acupuncturist - must be 5 element acupuncture. This is VERY different than regular acupuncture. Much more painful (but we all know pain), but much more effective. Eventually I have worked my way down to 5 days per week, and eventually it will be once per week.
2. chiropractic - frequently, if your neck is out of alignment, that will play in to the whole migraine thing, and if you believe in acupuncture and merdian blocks, then if your neck is out that will play in to that. I used to go 2 x per week, and now I am down to 1x per week.
3. rolfing - frequently, migraines come to someone who has had various accidents; I had no idea that my cranium was out of whack (for lack of a more refined term). So I get cranial rolfing. On the first treatment, after 2 years of daily migraines, I thought I had died and gone to heaven. I started at 2 x per week, and now go 1 x per week.

I am completely off all medications, have not taken an immitrex, migranal, frova or anything like that in over a year. I continue all these treatments and YES it is a drag to spend so much time in treatment, however I am pain free, no more migraines, and I know that I won't have to do these treatments for ever.

I know that this seems overwhelming - it was for me. But these treatments saved my life. I spent most of those 2 years in bed, in pain. My children started calling our nanny "mommy". It was heart breaking. But I have made it through, and want to share this with other people. There is a cure. If you want more information, I am happy to provide everything I know.

NY Veggie
Regular Member


Date Joined Apr 2011
Total Posts : 280
   Posted 5/20/2011 1:12 AM (GMT -7)   
Monahan You must have A LOT of money.. I can't begin to imagine what all those visits amounted to..

I am a vegetarian and eat nothing with bad things in it.. seriously..
and I don't use perfume, dryer strips, or perfumed detergent (I get instant migraine walking through the make-up perfume section of a department store!!

If I didn't have honey I would not be a happy camper. If I did not eat cheese I would die. Ditto my morning tea. No other caffeine!
I am not convinced that anything you mention is really the culprit with most of the people in this forum
you do not mention chocolate or aged cheeses which do affect some migraine sufferers...
it is not the sugar or the cheese but the natural chemicals these delicious foods contain. Fresh and semi-soft cheeses are fine.

The part about the liver and popcorn is a crock.. although I agree with you about the chemicals in the "butter" but you are more apt to suffer with indigestion and higher cholesterol then a migraine from it .. .and broken teeth.. well perhaps fatty liver if they went to the movies everyday!
My liver function gets checked just about every other month and it's in great shape.

I too saw a chiropractor about once a week because I have had neck accidents.. he was a friend that would work on me sometimes for hours..
sometimes it helped, sometimes I was just in Migraine mode and nothing stopped me from waking up with them everyday.

I am seeing the co-chair of the neurology dept of a prestigious hospital in NYC

NY VEGGIE
Brain Aneurysn FIXED, Crohn's, Migraines, Fibromyalgia, Hypothyroid, Polychondritis, Pericarditis, Depression
Lacto-Vegetarian Low-Residue Diet,
Solgar V-75, Gentle Iron, Calcium, Vit D, Flaxseed Oil, B2, Biotin, B12 shot, Turmeric
Pentasa, Metaprolol, Gabapentin, Synthroid, Protonex, Plavix, ASPIRIN, Flexerol, Zocor, Xanax, Fiorinal
Was on Entocort, INH, Prednisone, Prednisolone, Cipro, Flagyl
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