severe left sided headache ---waiting on neuro appt thursday

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New Member

Date Joined May 2011
Total Posts : 1
   Posted 5/28/2011 10:28 PM (GMT -6)   
I have been suffering from headaches most my life but have never experienced one like this.   I have been to urgent care, to ER and they kept me for observation over night, MRI, MRA, CT, all normal.  Have had nerve blocks with steroids in ER and then by Orthopedic surgeon.  Nerve block gave me relief but still have headache. I have to sleep upright in chair with neck pillow and if I do lay down and have a spasm I am in excruciating pain from Occipital to Parietal area of my head.  Living on Lortab, Celexa, Valium and 
Baclofen.  I have been out of work 6 weeks and have appt with a different neurologist thursday to discuss pain management.   I have been told that botox has worked for what they diagnosed me with which is occipital neuralgia.  What else is there to do?  I am discouraged, very dedicated worker in my job and have never had anything like this.  I am almost ready to drive to Duke, MUSC or anywhere that can give me immediate relief and permanent so I can get back to work.  Any suggestions.

Regular Member

Date Joined Feb 2005
Total Posts : 310
   Posted 5/31/2011 5:01 AM (GMT -6)   
So sorry to hear you are dealing with these terrible migraines. I have chronic daily migraines. My pain is only on the right side of my head and the pain goes down into my neck. I have tried about every med the neurologist knows to give me. I even tried botox a couple months ago but it did nothing and cost the insurance company $3,000! I had to pay $600.00 out of pocket! The doctor is trying to tell me it might take 2 or 3 more times to get any relief from the botox, but who can afford to keep paying that much! there is no way this little tiny bottle of serum could cost $3,000 dollars! No wonder it cost so much to have insurance! I also went to UVA in Charlottesville Va to have the protocal DHE iv treatment for my migraines and that was short lived it only lasted about one week. I have checked into having Nerve Decompression Surgery on my head, but I would have to fly to Houston Tx for the surgery and my insurance turned the procedure down. mad I say if the insurance would stop my migraines then it would save the insurance company a lot of money! I have had brain surgery and I think there is a nerve being compressed in my head, maybe the way my skull healed. The plastic surgeon/neurologist says there is probably scar tissue on my nerves on the right side of my head and the back of my head. I'm praying for some relief. I woke up at 4:00am this Tuesday morning with a Terrible migraine, it's going to be a very long day! I hope you all have a migraine free day!



Veteran Member

Date Joined Jan 2006
Total Posts : 1308
   Posted 5/31/2011 11:05 AM (GMT -6)   
Hi Insanepain,

I am sorry to hear that you are suffering so much with this. If you have not already done so, you need to see a Neurologist who is a Headache Specialist rather than a pain Management Doctor.

Neuros who specialise in Headache know so much more about how to treat headache in general but especially unusual ones like Occipital Neuralgia and other rare headaches.

take care

Co-Moderator of the Migraine/Headache Forum

DX: Hemicrania Continua, Chronic Migraine, IBS, Allergic Rhinitis and Heart Murmur

Meds: Imigran Injections, High Flow Oxygen, Mebeverine, Lansoprazole, Nasonex and Clarityn
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