hi y'all! I'm still kicking-lol!

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Date Joined Mar 2011
Total Posts : 40
   Posted 6/1/2011 1:35 AM (GMT -6)   
Hi everyone, I pray and hope this finds you all having a good health day! Wanted to update you, the neuro dr. Was correct on all five diagnosis of spinal leak headache,hemi migraines, c2-c3 nerve root migraine, daily migraine and drug toxicity migraine...I'm not even allowed excedrin, apparently even though I wasn't taking anything for the migraines to speak of, my body's chemistry won't tolerate anything. Got a new one to add to the above, pseudotumor cerebri- apparently my body thinks there is a tumor even thought there is nothing there and I produce too much spinal fluid-yeah me! It hurts!! Started a new med for that-it makes me violently ill-like hug the toilet all night, not sleep ill... Tried topamax again, per his request- did nothingfor this pseudotumor thing...see him in 2 days, gonna ask for another spinal tap to get fluid off, next line of treatment. Hemi migraines almost gone with verapamil twice a day, only have speech problems every other day for 20 mins. Used to be full stroke symptoms for up to 24 hrs at least 4 times a week.... Daily migraine -gone! C2-c3 nerve root migraine -ok, almost gone-got two injections and doing PT now...works great!! Almast at the end of PT-gonna miss it! Gonna go see a rheumatologist for these darn muscle tremors/spasms/weakness that keeps getting blamed on med side effects-but not treated...spasmed most of today in my legs, hurt tonight!!! These actually started in feb. But thought they would completely go away with med stops and changes-nope...lost 15 lounbs with being so sick and losing muscle mass-i'm not happy about it! (But my head doesn't hurt very much or often-just need to figure out how to stop the muscles now. Still not sitting still very well-if I can be up, I am! Downsizing on house possessions, putting stuff not frequently used in the storage shed and getting everything out of the basement-too much for me to try to clean/keep up with. My best friend (like an adopted mom) has a mobile home for rent right next door to hers and cheap, if this is a long term problem with the migraines and/or muscle condition-moving there and selling house. I need a smaller place for me and my kiddo that's one story, not laundry in the basement to do...it's a beautiful home on the inside and has a big yard! Dogs can come with, fenced yard-cats can't, but they can stay outside (wink/wink). If you can't tell I'm thinking a lot clearer and able to focus better too-about darn time! Still not giving up! Thanks for all of the support, I really appreciate knowing that there's people out there!!! Love you guys! Amy
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