New to Migraine forum - 9 year old on Topamax

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Susan R
Veteran Member


Date Joined Dec 2010
Total Posts : 511
   Posted 6/13/2011 11:34 AM (GMT -7)   
Hi all
I am normally not on this forum but another Healingwell board, and ran across this. I am 41 and have had migraines since I was about 9. Unfortunately my 9 year old son has been cursed with migraines since he was about 7. Finally got him to a Neurologist who diagnosed him and decided to try him on Topamax for a limited period of time. She also gave him an RX for 400 mg Motrin, with direction of taking the moment he realizes he has a headache, with a soda. If this doesnt work then he is to take Amerge (which has been successful for me for years) He has been on the Topamax since January, and wanted to leave him on till after school was out, she didnt want to wean him at the end of the school year. So, we have been keeping his headache log, and at this point has only had one headache in 1.5 months (woo-hoo) and the headache he did have was yesterday, after he had missed 2 doses of his topamax due to being at a friends for a longer than expected period of time. We go back to see her tomorrow and I am hoping she will ok getting him off the Topamax. I know it will need to be weaned down, but does anyone know how that works, what the length of time is that it will take him to be completely off? Anyone have any info on long term effects from the limited time on topamax, was this a long term solution or just a bandage on the problem. I hate to think that my son is going to be plagued for the rest of this life with pain like this. I am aware that he may grow out of the migraine, but I am trying to get an idea of the effect of the topamax.

Thank you in advance for your time and input
Susan

Susan R
Veteran Member


Date Joined Dec 2010
Total Posts : 511
   Posted 6/14/2011 1:30 PM (GMT -7)   
no input, but will update.

Took my son to see his Neurologist today, he has released him from his care, unless otherwise needed in the future. We are suppose to wean him slowing from the Topamax. He is currently taking 4 (15 mg) pills per day, 2 morning and 2 at night. We are to drop one pill in the AM for 2 weeks, then drop one from the PM dose for another 2 weeks, until he is off by the end of July.
Husband 39 at diagnosis 12/2010.
No symptoms, PSA 18 in 10/2010
one month antibiotic then PSA 12.6 in 11/2010
biopsy end of 11/2010 Gleason 6
Da Vinci prostatectomy 2/2/2011
1-2 pads per day
nocturnal erections within a month, and able to have sex with Levitra.
1st post-op PSA less than .05

staging: pT2aNo, Gleason 6
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