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goosebarn
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/22/2011 4:22 AM (GMT -6)   
I have a headache everyday, and have done since Oct 9th 2009, and yes I have explored every avenue, forded every stream, tried conventional medicine, chinese medicine, hypnosis and a lot of other things...
I am now not working, as being a nurse, it was affecting my memory and my ability to function.
My memory is terrible, and apart from the financial implications I hate being at home.
I get up with my husband every morning, walk the dogs and then change into "work clothes" just to convince myself that I am ok, but somedays it doesn't work at all
..
Nothing works as far as analgesics go, unless I resort to morphine sulphate when it is so bad that banging my head against the wall feels better.

I tried Toprimate which made me like a zombie and still did nothing to the headaches

most of the time the doctors just tell me to live with them ..well thats great...
ANd no they are not due to too much medication as I rarely take anything and no I am not stressed except for the fact I have a headache every day, and can't work!!!

Violet Rose
Regular Member


Date Joined May 2011
Total Posts : 48
   Posted 6/22/2011 6:44 AM (GMT -6)   
I completely sympathise with you!!!
 
I too am no longer able to work because of these migraines/headaches every single day.  I've also had neurologists pretty much tell me to 'learn to live with it'!!! I can't just accept that.
 
I've had a particularly bad week this week, waking up with a very painful migraine every day, take my medication, feel better after a few hours of bad pain only for it to return the next day.  I understand that some drugs can cause rebound but this doesn't make sense for me because I can suddenly be totally fine for a week to 10 days with no drugs needed whatsoever and suffer no withdrawal type ill effects. I just suddenly feel fine so don't need to take anything.
 
My partner and I have tried so much to alleviate this problem this past 6 months...both of us are determined to find the cause but it is frustrating to keep trying things, praying that this time it will provide relief only to be disappointed again.  We have tried elimination diets, iron, magnesium, 5-htp supplements.  We are careful to avoid all my known triggers (strong sunlight, stressful situations ect) but still have found no relief.
 
I have been on different types of preventative medication but none work for me the only thing that works are triptans when I have a full blown migraine which is very often now.
 
My next step is to try botox as my major migraines always seem to start in my sleep and as I know I frown a lot in my sleep I wonder if this is a cause of the pain.
 
I looked into TMJ being a cause a few years ago but am not convinced as I have a hard time sleeping with my mouth closed so don't see how I could be grinding my teeth!!
 
I am trying to stay positive but its hard when you start to run out of options! Will post on here about the botox when I have it done :)
 
keep smiling!
Julie
x
 
 
 
 

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 6/23/2011 11:55 PM (GMT -6)   
Have you had a sleep study (polysomnography) Julie?

Violet Rose
Regular Member


Date Joined May 2011
Total Posts : 48
   Posted 6/24/2011 12:39 AM (GMT -6)   
no i haven't but am seriously thinking about it now.
 
I'm going to order a mouthguard today and give that a try, just to see if I am grinding my teeth or not.  All day yesterday I had a headache accompanied by horrendous jaw/teeth pain and its making me wonder again about the TMJ thing....
 
It was so bad I was massaging my jaw joints with my fingers and noticed that on one side its very tender where I press.
 
Last night I made very sure that I slept on my back, rather than fall asleep with my face on the pillow and tried to relax my jaw muscles and I have woken today with NO headache for the first time in a week.  Could be a coincidence but its worth exploring :)
 
Will let you guys know how I get on :)

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 6/24/2011 10:07 AM (GMT -6)   
Good for you. It sounds like a great first step! Are you getting a hard mouth guard made by your dentist? They're moderately expensive, but tend the work quite well for bruxism (teeth grinding).

jbird
New Member


Date Joined Jun 2011
Total Posts : 3
   Posted 6/24/2011 10:45 AM (GMT -6)   
I'm so sorry for your pain. I am right there with you. My doctor told me yesterday, "well, this is just something that life has dealt you". I am also becoming disfuncional at work but don't no what my next step is to take.
jbird
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