Your opinion: How has Headache Impacted you? Your life? Your family? Your work? Society?

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New Member

Date Joined Jun 2011
Total Posts : 1
   Posted 6/24/2011 9:16 AM (GMT -6)   

Your opinion: How has Headache Impacted you? Your life? Your family? Your work? Society?

A team of researchers are developing a program for adolescents and young adults (between 14-28 years old) who have recurrent headache. The “Wired Headache Intervention” will be delivered entirely through the web and the iPhone.  

We want the intervention to be interesting and interactive.  The educational section will include descriptions of the impact that headache can have on the individual, the family, and society. We want to use blog-type entries or quotes from people like you (professionals, family members, doctors, politicians) describing how headache effects daily life:

·         how headaches limit daily activities,  

·         loss of work hours or productivity of employees because of headache,

·         the experiences of taking care of children or adults with headache,

·         the personal experiences of living with somebody who suffer headaches,

·         the societal cost of headache, etc.


We would like to hear your experiences and may include them in the educational section of the Wired Headache Intervention program! All quotes will be used anonymously, no identifying information will be stored. Future research will be conducted on the use of the program but your quotes will not be analyzed for research without prior consent.

Please email with a short description about your experience with headaches. Feel free to contact me if you have any questions, or would like clarification. Thank you for your time!


New Member

Date Joined Jun 2011
Total Posts : 1
   Posted 6/25/2011 5:17 PM (GMT -6)   
On-set of periodic double vision in July, 2000. Migraines started within 2 weeks.
Get 3 to 4 migraines daily.
Also have spinal stenosis and low testosterone.
Have tried every triptan on the market, had over a dozen epidurals.

Have nystagmus, cannot balance on one leg, have photophobia and phonaphobia.
Nothing has worked so far. Being set up with neuro-endocrinologist for additional lab work.

Have temporarily totally lost all vision on two occasions -lasts about 25 minutes.

Talk about trying to live a normal life!

Holding off on bion generator until all lab work is complete.
Just to make thins interesting, Kaiser paralyzed my vocal cords during a simple deviated septum procedure.

Anybody being treated (had succes) in eliminating chronic migraines by being treated for low testosterone?

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