23yrs old, with Chronic Daily Migraines - suffering for 6years

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Date Joined Jul 2011
Total Posts : 1
   Posted 7/22/2011 10:21 AM (GMT -6)   
Hi everyone.

As you would have seen in the subject line - I am a 23yr old female who has been suffering from migraines for 6years now. The past 2yrs they have turned into Chronic Daily Migraines. I am currently on 2+years medical leave from the disabling migraines as the dizziness, nausea, fainting and excruciating pain doesn't exactly make me the most reliable employee.
The pain sometimes wakes me up at night & has given me insomnia. My body aches constantly. I wake up with the migraine and I go to sleep with the migraine. It is worse first thing in the morning and then again late in the afternoon - roughly 7or8/10 and calms down during the middle of the day and middle of the night - roughly 5or6/10. Feels like I have 2x rubber bands around my head - one around my skull - mainly the base and then another around my face - mainly around my jaw/temple/eyes, the tension in my head and around my skull/face makes me feel like my head is going to exlode! I am tired and irritable all the time.
I have had doctors misdiagnose me with tension headaches, TMJ, fibromyalgia etc etc and have given me meds accordingly, with absolutely no change to the pain. My eyes water all day every day - I have been told thats my bodies way of coping with the pain - but I have not found anything that stops my eyes from watering.
I have had almost every scan related to head, neck, teeth/jaw etc and all the blood tests imaginable.
In the past 4yrs I have seen several neurologists, 2 pain management clinics and well, I can't even count how many doctors. Over these 4yrs I have been trialed on over 35 different medications from migraine preventatives, seizure/epilepsy meds, anti-depressants with or without analgesic affects, you name it, I have probably tried it or at least in its category.
I am now on Norspan patches every day and allegron at night - to try to hold myself together & endone tablets when the pain becomes too unbearable! I can cry at the drop of a hat for absolutely no reason at all and the pain just makes me miserable every single day!
I have tried chiropractic, physiotherapy, acupuncture, aromatherapy, remedial massage, deep tissue massage, osteopaths, psychologist. Botox treatments, cortisone injections and the list go on!!!! The doctors, specialists and pain management specialists have been very reluctant to put me on multiple meds at a time as they believe young people are more likely to form addiction and reliability on all the meds.

I have had GP's accuse me of being mentally unstable & that I am just 'thinking' up the pain.. But the several psychologists I have seen have proven that I am not mentally unstable and I don't have any underlying conditions. But I do suffer depression, to put it simply - I am depressed from being in so much pain, for so long!
It is becoming harder every day, as I feel I am coming to the end of the road with options for finding a cure or at least something will help me get on with my life! Surely there has to be other people in the world suffering these same symptoms..

I am now trialing something different. I am looking for people who are going through the same daily struggle as me. I am looking for people who may have answers that none of the practitioners I have seen have thought of. Please, if anyone has anything that may help me get my life back, I am pleading for your help. Thank you.

Violet Rose
Regular Member

Date Joined May 2011
Total Posts : 48
   Posted 7/22/2011 11:11 AM (GMT -6)   
Amy, I really feel for you cry
I was exactly where you are only a few months ago. I felt like I had tried everything and had nowhere else to turn. I too was misdiagnosed with TMJ and menstrual migraine.  I've been accused of inflicting my migraines on myself by being too anxious and prescribed anti-anxiety meds.  Then I was told it was my 'hormones' and that I should try to learn to live with it.  I was completely at the end of my road with it.
Then I stumbled on something I never dreamed would help.  I'm not saying this will help you but if there is a chance its worth a try.  I began to take a daily IRON supplement and my migraines have gone from daily to only 2 in the past 6 weeks, this has not happened in 20 years.  Now if I do get a headache it disappears on its own with sleep or normal OTC asparin.  This never happened before I was constantly having to swallow triptans to even lead a semi normal life (if you can call it that with migraine). Left untreated my migraines would last 5 days at least with only 3 days in was lucky before the next one arrived.  During those migraines I was bedridden unable to even lift my head off the pillow.
I found that there is a link between low iron levels and the brain not recieving enough oxygen, this therefore causes the blood vessels in the brain to swell hence causing the migraine.  I don't know if this is why some people find recieving oxygen helps their migraine.  I never tried this so I dont' know.
This was the last thing I thought was causing my migraines and I only began to take iron tablets really to relieve my restless leg syndrome.  I never dreamed it would cure me of the migraines that have wrecked my life for the past 20 years!!
Maybe have a blood test just to check?
I really hope you feel better soon I know exactly how it feels for you
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