MODERATE TO SEVERE HEADACHES EVERY SINGLE DAY FOR 13 YEARS!!! HELP

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bkitty224
New Member


Date Joined Mar 2005
Total Posts : 6
   Posted 3/28/2005 5:33 PM (GMT -7)   
I am a 23 year old (soon to be 24) female that has SUFFERED with all kinds of headaches since age 11. I was diagnosed with migraines at that age andhave had multiple tests since then until i was about 17. the last mri showed nothing but like i said, i was 17.
i have a really bad headache right now and this is very hard to do. but i am soo sick of these headaches all the time. i get them each and every day. i wake up every morning with a headache so bad that i can barely see. sometimes they last all day no matter what i do to get rid of them. today i have taken 10 tylenol all together, and am now drinking rum, as the tylenol and the caffeine i had in my coffee for this reason has done absolutely nothing. i want to bash my head into the floor but i know that wont help either. i need to go back to the neurologist but i have no insurance and even if i did, i am soooooo scared!!! this is not normal. not a day goes by that i dont have a headache.
any advice? any idea on what the problem could be? should i be worried about a brain tumor or an aneurysm? i am soo scared! someone please reply ASAP!!!!

thank you.
beth

bkitty224
New Member


Date Joined Mar 2005
Total Posts : 6
   Posted 3/28/2005 5:38 PM (GMT -7)   
SOMEONE PLEASE REPLY! ITS SO BAD THAT I JUST WANNA SHOOT MYSELF SOMETIMES.

bkitty224
New Member


Date Joined Mar 2005
Total Posts : 6
   Posted 3/28/2005 5:50 PM (GMT -7)   
WHY WONT ANYONE RESPOND?!??!?!?!? IS IT BECAUSE I AM NEW HERE? I CAME HERE FOR ADVICE. INEED SOMEONE TO TALKTOMOE REALLY BAD! I AM REALLY SCARED!

bkitty224
New Member


Date Joined Mar 2005
Total Posts : 6
   Posted 3/28/2005 5:57 PM (GMT -7)   
so what do i do? just sit here and reply to my own darn post??? is that what this is for??? thank yyou all so much

bkitty224
New Member


Date Joined Mar 2005
Total Posts : 6
   Posted 3/28/2005 5:59 PM (GMT -7)   
i might as well blow my brains out before this headache does it first

kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 3/29/2005 9:54 AM (GMT -7)   
I am so sorry, I just saw this message now. I will no longer complain that I have had the same for 2 years!
10 years???


I assume you have been through many doctors for this? Does ANYTHING give you any relief? I have worked on relaxation, massages, and chiropractor that helps a wee bit. Ice packs on my neck do too....

Please keep looking for help and answers. Chronic pain is so hard to live with. I have also other chronic things going on....

tysmyboo
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Date Joined Dec 2004
Total Posts : 921
   Posted 3/29/2005 4:39 PM (GMT -7)   

How often are you taking over the counter medications? a lot of the problem you are having may be rebound headaches...headaches that are caused by medication such as OTC's.

Are you seeing a doctor? Is is a neurologist or headache specialist and what type(s) of medication are you taking to prevent headaches and then treat them when you do have them?

 

Fill me in on a few details so I can help you...

Sara

 
Or more about me at:
 
 
Thanks for Visiting HealingWell.com


RacerRoni
Regular Member


Date Joined Mar 2003
Total Posts : 48
   Posted 4/2/2005 8:22 PM (GMT -7)   

Have you seen a neurologist for these headaches?  I'm surprised they haven't tried any daily meds for you.  There are some really good ones out there :)  I too suffer from chronic daily migraines.  Have for the last 20 years.  Mine have recently increased in intensity so I'm now back with the neurologist running thru tests, etc. trying to figure out if something has changed.  I've been through a lot of meds (and finally found Topomax).  You should definitely get in to see someone and insist that you find something to help with the pain.  There is no sense in suffering through migraines all day every day.  Be patient though, it may take time to find the right drug....it did for me...but hopefully there will be something that will work for you:)

 


RacerRoni yeah Fibro - 6 yrs.

"Life is like a Piano, What you get out of it depends on how you play it..."


lara1966
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 4/5/2005 3:03 PM (GMT -7)   
 
 
bkitty,
 
If you are in really bad shape again in the near future, head to the emergency room.  There is usually one hospital nearby that will take people without insurance. They can at least knock it down temporarily.
 
About the TYLENOL:  PLEASE, you must not take more than the recommended amount of Tylenol! It is dangerous for your liver. You don't want to need a liver transplant along with headaches.
 
You should not have to suffer from headaches for so long.  I know you don't have insurance, but do you have relatives who can help?  YOu need to see a headache specialist.  The one thing that you can do by yourself is stop the tylenol and caffeine, because there is some chance that you have rebound headaches.  But that would be very difficult, and since you have been having them since 11, they may very well be migraines that would respond to treatment.
 
Could you describe them too us?  Where on your head?  Do they ever disappear entirely? Do they move around in your head?  Are there "triggers" such as light, smells, foods, etc?
 
If you are low income, you may be eligible for medicaid.  There may be a free clinic in your area, and they may able to find a headache specialist that will help you.
 
There is another good forum at braintalk.org.  Scroll way down to the conditions list.
 
Good luck.
 
Lara
 
 
 

dambarn
New Member


Date Joined Jan 2005
Total Posts : 9
   Posted 4/6/2005 10:05 PM (GMT -7)   
I am so sorry to hear of your pain..........been there done that! I too suffer with migraine :( .....yes it really does suck! BUT mixing tylenol & rum is not the answer.......unfortunately you will be creating larger problems!! I have watched my sister stuff herself full of 222 pain killers for years. She has a stomach full of ulcers. Her Neurologist says she does NOT have migraine........she has rebound headaches. I've tried to reason with her.......but know in my heart that she is addicted to them. My specialist told me that 222's are the worst over the counter pain relievers ever to be sold! and believes that they should be listed as prescription because of their over-abuse!!!! I know that it would be difficult....but perhaps if you sought pain management help and you stopped taking the pills..........which don't seem to be relieving your pain.......you might have a better chance at living more comfortably!!! Good Luck with your choice. I'll keep watch on the forum to see how you make out :)
UC for 23 years + Migraine for 27 years
Surgery to remove colon June 30th, 2004
DRUG FREE
Migraine FREE
Currently taking: Vitamins, B, C, D, E, Probiotics, Calcium, Digestion Enzymes, Metamucil Capsules
Total weight loss since surgery = 35 lbs.......YAY

Friends are the family we choose for ourselves!


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 4/7/2005 4:56 PM (GMT -7)   

dambarn~

Thanks for that message...and for sharing that with us all. We appreciate it.

Question: What have you done to eliminate/reduce your migraines?

 

 
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Thanks for Visiting HealingWell.com


the fisherman
New Member


Date Joined Apr 2005
Total Posts : 19
   Posted 4/10/2005 2:27 AM (GMT -7)   
i too have these headackes severe ones and im actually thinking about giving up my work for this as it hurts to much..would anyone no if i would be ablt to get any help with my income if i do come out of self employement as i have 2 kids to look after too ive tried all kinds of stuff like pain killers for god knows how long and my doctor keeps saying its the stress of life he doesent even no my life to say this sometimes i am so bad i could do my self harm but no one seems to no how these things get you...would anyone have any suggestions for me please..........im self employed person i have a lady and 2 kids but i really dont no how long i can go on working with this pain

avril
New Member


Date Joined Apr 2005
Total Posts : 1
   Posted 4/10/2005 9:01 AM (GMT -7)   

Beth,

has your doctor never suggested you try Triptans, for example Naratriptan ( Amerge in U.S.A. I think )...I've had migraines since mid-eighties, at first I only had paracetamol and it didnt do a thing, I used to lie unable to even talk, just be sick, my son would bring me water that I couldnt drink.  Then I was given Cafergot ( Ergotamine )...this does get rid of the pain but the new doctor I saw when I moved just nagged me about how dangerous it was...I didnt care as long as I got relief.  Eventually he gave me Naratriptan ( Amerge? ) and I now take them almost daily, ( though sometimes with 1 or 2 weeks free ).  I eventually thought it was weather changes that affected me but the doctors I saw all were non-commital, made me feel as though I was silly to suggest this.  Now I'm afraid that they will stop giving me the Naramig one day as it is very expensive.  I just found this site and to see the messages about weather headaches has been so amazing, I was beginning to think I was going crazy.

God Bless you All.

Avril

 


the fisherman
New Member


Date Joined Apr 2005
Total Posts : 19
   Posted 4/14/2005 6:42 AM (GMT -7)   
lo anyone got any info for me please
[URL=http://www.imageshack.us][IMG]http://img137.echo.cx/img137/4049/fisher19ol.jpg[/IMG][/URL]


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 4/14/2005 10:25 AM (GMT -7)   

Fisherman-

You can apply for SSDI (Social Security Disability). It is a little bit of a process and you will need a good doctor who is willing to back you up and can write statements saying that you are unable to work due to medical conditions etc.

I will see if I can find some websites for you to check out. I just started a new job, so if you don't hear from me soon...email me, ok?

Sara

 
Or more about me at:
 
 
Thanks for Visiting HealingWell.com


the fisherman
New Member


Date Joined Apr 2005
Total Posts : 19
   Posted 4/15/2005 12:56 AM (GMT -7)   
will do big thanks my doc should be ok with putting me on that as ive had him all my life so we can chat ect clear
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Ashley100
Regular Member


Date Joined Apr 2005
Total Posts : 29
   Posted 4/15/2005 4:14 PM (GMT -7)   
Hey did anyone ever try Ginger and Feverfew?? I have also been told of good accounts by using B2 and Magnesium. Good luck. Take care to pain free days. I feel your pain. Sorry.
Ashley

the fisherman
New Member


Date Joined Apr 2005
Total Posts : 19
   Posted 4/18/2005 10:28 AM (GMT -7)   
hi again today it happened again was driving up a country lane and my migrane as usuall is blasting my head to bits and then my eyes started to go all funny and fizzy like with colour spots making it hard to see again does this happen to anyone else please.sometimes its so bad i feel like driving of a cliffe
[URL=http://www.imageshack.us][IMG]http://img137.echo.cx/img137/4049/fisher19ol.jpg[/IMG][/URL]


Kit
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 4/21/2005 4:26 PM (GMT -7)   
I am new at this so I hope you will all be patient with me. First of all anyone who has ever had a migraine is not a wimp. You are tough to survive them at all. I have been getting them for the past 26 years. I didn't know it was possible to survive such constant pain for so many years. I have tried just about every drug and alot of other stuff besides without much luck. I even remember trying the banging my head against the wall and I definately don't recomend that to anyone!!!!!!!!! Every time I try something new I feel I have exhausted all my options and I feel I will have to just give up if it doesn't work. Then the next thing I know I will run onto another idea to at least give me some form of HOPE. I guess this is why I looked into this website because I was looking for a little hope. I was hoping that maybe talking to others who had some understanding of how I feel It might help. I am not looking for pitty. I guess I just needed to see how this all worked and maybe we can be of help to eachother. Kit

Kit
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 4/21/2005 5:35 PM (GMT -7)   
dixie 27 thanks for the response. Any doctor that doesn't listen to the patient about what really works on THEIR headache shouldn't be a doctor as far as I am concerned. I have a nephew that gets migraines and none of the regular so called migraine meds don't work on him either. It is so difficult to deal with. He hasn't found anything that works yet. Some of the regulars work on me like Imetrex and Zomig but I get them so often that It isn't possible to take them as often as I need them and I have so much trouble with the preventative meds that I feel like there has just got to be some other answer out there for me. I would give up but I am just turning 50 this year and I hope I have a few healthy years left. I would like the last half of my life to be better than the last 26 years. If we can just hang on one day at a time and alot of times even one minute at a time we will be here tomorow to keep trying. Peace be with you Kit

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 4/21/2005 6:30 PM (GMT -7)   

DIXIE AND KIT...

These are some great posts! Keep them coming. I hope to be around more in the next few days!

Sara-Migraine/Headache Forum Moderator

 
Or more about me at:
 
 
Thanks for Visiting HealingWell.com


the fisherman
New Member


Date Joined Apr 2005
Total Posts : 19
   Posted 4/28/2005 12:41 PM (GMT -7)   
now all we need is some relief guys and girls my doctor has told me to come out of work and go on sickness benfits
because the pain is so bad in my head and i get these probally about twice a day for long
periods aswell. but i have a big problem if i do come out of work how on earth am i going to pay for this ten thousand pound van i have.so to top of my pain in my migranes ive also got the stress of this which is doing my head in proper sometimes i wish i was not living and maybe things will all be better
[URL=http://www.imageshack.us][IMG]http://img137.echo.cx/img137/4049/fisher19ol.jpg[/IMG][/URL]


momof3
New Member


Date Joined Apr 2005
Total Posts : 1
   Posted 4/30/2005 7:01 PM (GMT -7)   
Hello All. I am writing for the first time. My husband suggested I try to find some kind of support group. Someone who understands what I go through every day. He is sick and tired of me being sick and tired. I have not worked for over a year now and it has been very rough on my marriage. I have had migraines since I was around 14. I have been to a neruologist, spine doctor and many pain doctors. They tell me that my C2-5 are very loose and have too much movement. I have had the epidural injections twice to no avail. I am so tired of being in my bedroom in the dark and all alone. Once the pain gets too bad I begin to vomit until there is nothing left and then I call someone - anyone that will take me to the ER. Sometimes they start off with phenergan and torodal even though I tell them it won't work. Then if they are a caring doctor, they will eventually get to the demerol doese and I feel better. But I do run across Doctors that refuse to give me any pain meds, like I am making up the pain and coming the the ER for fun. I usually get yelled at to stay in my room and shut up, from my husband, but my 9 yr old daughter will lay by me and refreshen my cold rag. My 3 yr old daughter just cries next to me while I am vommitting and my 10 yr old son just locks himself in his room.......I so feel like giving up. I am currently using a pain patch called Fentynl 75 mg. and it just keeps them down to 3 or 4 a week. I have muscle relaxers, but they do not even help. Some one somewhere, please tell me that I am not the only 32 yr old mom and wife that is so useless.

migraines4life

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 5/2/2005 4:08 PM (GMT -7)   

Welcome ALL....

And thank you for your wonderful posts.

 

Sara

-Migraine/Headache forum moderator

 
Or more about me at:
 
 
Thanks for Visiting HealingWell.com

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