I have to travel to see my Headache Specialist. I have a friend in the UK who travels 500 miles to see my consultant - he wouldn't have it any other way even though he is on benefits, the benefits of the treatment he receives far outway the cost for him, got to say I would do the same if I lived there!!
I really feel for you Mercyme as the Docs must know that letting you have meds such as Fioricet that are loaded with codeine and have the potential to make things worse because of rebound headaches. I really wish I could help you find a way out of this!
I wonder if you could manage to find your nearest Headache Specialist and travel to see him/her, and they would give instruction to your local Neuro as how best to treat you?? My friend that I talk about sees my Consultant every now and then who instructs the local Neuro so many of the check ups he does not have to travel so often!!
Hang in there, take care
Co-Moderator of the Migraine/Headache Forum
DX: Hemicrania Continua, Chronic Migraine, IBS, Allergic Rhinitis and Heart Murmur
Meds: Imigran Injections, High Flow Oxygen, Mebeverine, Lansoprazole, Nasonex and Clarityn