Posted 11/4/2011 1:59 AM (GMT -7)
Hi from fiona
My partner is currently in limoges hospital in France, he has been over a week, I have battled for the last 12 years to get doctors to believe me that he has familial hemiplegic migraine. They have done every scan and x-ray under the sun, it is a teaching hospital, and they still have no answers. He is numb down his right side, he now has double vision, he has seizures 2-3 times a week, he is agony with pain most days. they have now agreed to send a sample of his blood to Paris to diagnose if he has a gene missing in genetic make-up. As far as I know there are 5 different types of FPHM which is a heriditory condition, but because he was an oprhan no parents known, it been difficult to get any history on him. He is on blood pressure tablets, stabilisers, and a drug that treats osteoporosis which is a strong anti-inflammatory non steroid. But he still getting worse. Good luck to all you suffers, the difficulty is the expense required to diagnose the correct type, and also to get people to listen. Wipedia dictionary has a good article on the condition on the internet.