FHPM familial hemiplegic migraine

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Date Joined Jun 2010
Total Posts : 1
   Posted 11/4/2011 3:59 AM (GMT -6)   
Hi from fiona
My partner is currently in limoges hospital in France, he has been over a week, I have battled for the last 12 years to get doctors to believe me that he has familial hemiplegic migraine. They have done every scan and x-ray under the sun, it is a teaching hospital, and they still have no answers. He is numb down his right side, he now has double vision, he has seizures 2-3 times a week, he is agony with pain most days. they have now agreed to send a sample of his blood to Paris to diagnose if he has a gene missing in genetic make-up. As far as I know there are 5 different types of FPHM which is a heriditory condition, but because he was an oprhan no parents known, it been difficult to get any history on him. He is on blood pressure tablets, stabilisers, and a drug that treats osteoporosis which is a strong anti-inflammatory non steroid. But he still getting worse. Good luck to all you suffers, the difficulty is the expense required to diagnose the correct type, and also to get people to listen. Wipedia dictionary has a good article on the condition on the internet.

New Member

Date Joined Oct 2011
Total Posts : 8
   Posted 11/6/2011 9:47 PM (GMT -6)   
I hope you have good insurance! I know what you mean about the expense of ruling everything else out first. I also suffer from hemoplegic migraines and from what the neurologists in the US have told me, seizures and migraines have very little in common. I would say it would be wise to allow them to search out another diagnosis, just in case. In the meantime, I hope that they are able to manage his pain well. Good luck to both of you!
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