what else can i do?

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twirlygigs
New Member


Date Joined Nov 2011
Total Posts : 2
   Posted 11/8/2011 5:53 PM (GMT -6)   
My name is Hollie and I'm 22 yrs. old.
After being diagnosed with almost 20 ear infections in 2 yrs. I was sent to an ENT doctor...
who told me that my ears are perfect except for some scar tissue on my ear drums.
Hard to tell how many times my family doctor misdiagnosed what she was seeing.
Then about 6 mos. ago I started getting horrible headaches.
-numbness and tingling in my face
-sharp pains
-pain behind my eyes
-my ears still hurt like they are full of fluid
when the headaches come on, it almost feels like a seizure and as it persists i can hardly move or speak clearly.
A couple of weeks ago I had an MRI done and it came back fine.
Now my ENT specialist is sending me to a neurologist and as soon as my new insurance takes effect I am going to see an optamologist.
 
is there anything else I should do?
is a similar situation driving anyone as crazy as it is me.
 
 

jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 11/9/2011 9:58 AM (GMT -6)   
Seeing a neurologist is a good idea. Do you notice if anything specific sets off your headaches? Are you sensitive to light? Do migraines run in your family? Migraines are a rule out diagnosis so hopefully your neuro will run some other tests to rule out other medical conditions. The symptoms you describe can certainly be migraine related - it is amazing the number of weird symptoms that a migraine can throw at us and I understand how crazy they can make us feel. How often are they occurring? Have you discovered anything that helps with the pain? Sorry for all the questions and hope that you are having a good day!

old2young
New Member


Date Joined Oct 2011
Total Posts : 8
   Posted 11/9/2011 2:29 PM (GMT -6)   
Hollie, hopefully these aren't migraines. As jewishmother said, migraines are a "rule out" diagnosis. If what you are describing IS coming from migraines, get ready for a long, expensive process before a good neurologist reaches that conclusion. You said, "when the headaches come on, it almost feels like a seizure and as it persists i can hardly move or speak clearly." Is this due to the pain or does it feel like the motor and speech centers of your brain are actually being affected?

Hope you get some answers/relief soon!

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 11/12/2011 2:11 AM (GMT -6)   
Neurological migraines can do that. How I know? Those 3 to 4 migraines a month I get now do that to me. Seeing a neurologist is good. I'd personally ask for a CAT Scan (CT) as well, as you sometimes can see things better verses an MRI. It can be numerous of things causing these horrid things to you, including inflammation in which a muscle relaxer would help. I would tell you something else, but my post would be edited by moderators. So with that I'm gonna tell you my favorite places to figure out how I am sick is webmd dot com. My favorite place to cross check all my medications in the interaction checker is drugs dot com
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

deltaforce
Veteran Member


Date Joined Jun 2010
Total Posts : 2256
   Posted 11/12/2011 2:19 PM (GMT -6)   
Maintain a diary of headaches. This will help the neurologist to figure out a few things. Write as much as in detail as possible. Search for headache diary on google and you will find plenty of examples.

I maintained such diary for last 2.5 years and it pretty much helped my neuro to figure out my migraine and to me to see if the medication prescribed was working in any way. Some of the medications are very expensive (e.g. Topamax) and the insurance companies are ***** so you also need to make sure that everything works out in a way that you get your headache resolved and you are not dumped by insurance companies in any way.

Are you taking any abortive (like Advil or Alleve) at the onset of headache? If yes, does it work?
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily,
Imuran, 100mg + 50mg
Vit. B12, 1mg
Multivitamin, 1 tablet daily
Fish oil 1200mg daily
Vit D 2000 IU daily.

Verapamil 240mg for migraine, Migraine episode now at least twice a month,
Ibuprofen 400mg is the only solution (but leads to bleeding). Looking for alternatives.

twirlygigs
New Member


Date Joined Nov 2011
Total Posts : 2
   Posted 11/22/2011 5:32 AM (GMT -6)   
the migraines usually occur at least 4-6 times a month. there is nothing that I have noticed that triggers them, I can be in a dead sleep and it wakes me up. it isn't as much of a painful feeling when i get to where i can hardly move or speak clearly but a weird, pressing-tingling sensation that takes over. i will definitely request a CT scan, it couldn't hurt. inflammation is what i'm leaning towards because since i've started taking muscle relaxers the migraines are as often but not as intense and they don't last for as many days. i started a diary for headaches, and i just found some helpful printouts to keep me on track. what helps the most is: advil, an ice pack and a dark room.

deltaforce
Veteran Member


Date Joined Jun 2010
Total Posts : 2256
   Posted 11/22/2011 9:23 AM (GMT -6)   
I got my MRI done. The neurologist wasn't positive about CT scan. MRI didn't show anything (as he already expected)

Inflammation is my theory too but apart from the fact that NSAIDs work on my migraine, there is no other evidence that I have proves it to be an inflammation. I talked to my neurologist about it and his answer was same, its a theory but no proof. I asked him to look it in that way and give me medications accordingly. He wasn't positive and told me that it doesn't work that way.. So my goal was, give me any darn thing to get the migraine episodes under control. I am happy that they have reduced now but I don't have an abortive yet.

BTW, what kind of muscle relaxant are you using? Does it work as an abortive?

Advil is good but long term use is not recommended, else you may want to look into PepZinGI supplement that you could use with Advil. Meanwhile, my recommendation is, talk to the neuro. May be something else will be more helpful and Advil stays as an abortive.
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily, Imuran, 100mg + 50mg, Vit. B12, 1mg, Multivitamin, 1 tablet daily, Fish oil 1200mg daily, Vit D 2000 IU daily, Butterbur 150mg daily.

Verapamil 240mg for migraine, Migraine episode now at least twice a month,
Ibuprofen 400mg is the only solution (but leads to bleeding). Looking for alternatives.

Post Edited (deltaforce) : 11/22/2011 8:28:15 AM (GMT-7)


Dezmond666
New Member


Date Joined Nov 2011
Total Posts : 2
   Posted 11/22/2011 3:13 PM (GMT -6)   
I wonder if u can help me I have had a rumbley stomach and headaches on the top right of my head for about 5months now it comes and goes but is mainly worse in the afternoon and evening I'm getting really worried it might be something serious. I have had a eye test that was fine I've had a blood test that was fine but I may of had glandular fever 4 months ago. But I really don't know what t do. Plz help
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