Posted 11/17/2011 10:24 PM (GMT -7)
Deltaforce, thank you so much for taking the time to read my post, and for your response. I am new to this and wasnt sure what to expect or how many details to give.
Okay, where to start... Ive suffered from migraines since I was 10, (I am 36 now). Over the years they have increased in frequency, duration and severity. I have seen 5 neurologists and 4 headache specialists.I have had several MRI, MRA's, CT scans, and 2 Lumbar Punctures. I have frequent labwork done to monitor my dehydration, kidney/liver function etc.etc. My last draw was actually today.
Ihave tried the following meds to name just a few: Gabapentin, Zonegran, Propanolol, Atenolol, Verapamil, Amitriptyline, Tramodal, Percocet, Vicodin, Reglan, Zofran, Compazine, Prochloraperazine, and Namenda just off the top of my head). For abortives: I've used every Triptan on the market in various forms. I've been using Imitrex oral and sub-q injections for about 3 years and its effectiveness continues to dwindle with time. Due to the fact that I experience severe vomiting with my migraines I can no longer take oral forms of the meds. I use injections and suppositories. DHE has been added to my arsenol just 6 months ago... As I said earlier, its hit or miss.
All of the medications I listed in my prior post are taken for migraine, including the supplements-Magnesium, Riboflavin, and CoQ10. I have recently discontinued taking Buttetbur and Melatonin as they did not have any effect.
I have completed Cognitive Behavioral Therapy (althoufh I still see my counselor on occasion), Chronic Pain group counseling, and Depression group therapy. I have done accupuncture, massages, and seen Occupational therapists as well as a dietician. I exercise daily (severe pain allowing), I do yoga as well as aerobics and weight lifting.
I am meticulous with my headache journal and have been for the last 5 years. I know my triggers inside and out and avoid them at all costs, although it doesn't make a huge difference. It gives me a sense if control and organization anyhow.
I am on a strict diet, and do not drink alcohol or caffeine. I should add that I'm a freak when it comes ro routine... No skipped meals, and I have a sleep schedule that I do my best to adhere to. When the pain is really bad that interferes with my ability to sleep so I use Xanax sparingly.
I am a nurse, although I haven't worked in two years due to my head... So I know the importance of utilizing coping skills, and how imperative it is to be your own advocate. I have been researching Chronic Refractory Migraines, the physiology, treatments and any and all other information I can get my hands on.
My current doctor is a migraine specialist. I've only been seein.g him since September of this year but thus far I do like him. He is very proactive, ambitious and educated on all of the latest information on migraines. He is actually reducing my Topamax and Fluoxetine.
He has mentioned sending me to one of "the big headache hospitals", but insurance is definately a factor. He hasn't mentioned what iv therapy hes willing to try with me in the future, I don't know what hes all prepared to do.
Honestly, I am one of the extreme cases. I have been told by numerous doctors that my situation is rare. I've been told (and as far as I know), I am doing everything right... I am at my wits end. I have a VEEY steong fairh in God and three of the most amazing children to have ever been born. If it weren't for those things I don't know what I would do or where I would be right now.
So, now that I have told you my life story... I M sorry it was so lengthy. Please let me know if you have any further thoughts. I REALLY appreciate anything that you or anyone has to offer. I will pray for pain-free days for you.
Thank you again and God bless,
Chronic Refractory Migraine
Botox,Adderall,Topamax, Asa, Co-Q, Mg+,B2,Trazadone
DHE IM, Toradol IM, Promethazine, Xanax, Imitrex inj
Diet, Exercise, CognitiveBehavioralTherapy, Relaxation, Sleep sched.
"Perhaps strength doesn't reside in never have being broken...
...perhaps it's in growing strong in the broken places."