I am new to the site and really wanted to see that there are people out there suffering like I have been doing for almost 20 years now. I am a surgery patient and I am getting ready to go back for complete removal of the occipital peripheral nerves on Feb 10. I had my first surgery in Feb of last year (he removed two lesser nerves, one on each side and the other four larger ones, he removes muscle from around the nerve so that it wont constrict) and I was in HEAVEN for about 3 solid months with NO migraine. I couldn't believe it - even during the rain, which, by the way, is my archenemy!!!!!! For about the first 10 years of suffering I was a frequent flyer at the ER (approx 4 to 6 visits a month) and have gone thru the whole sha-bang of explaining "I'm not a drug seeker, but Toradol does nothing for me". Those were the days of wishing I could be placed into a medication coma! LOL. It is so frustrating when they just cannot understand how horrible that pain is. It took a very long time to find meds that helped. I thank God for Imitrex! When that came out - ER visits dropped to about 1-3 times a year. However, I do want to share with you that an alternative to the narcotics, when I could not relieve it myself, was what my favorite ER doc called my migraine cocktail. I am not 100% sure on the milligrams of each, but I believe it was 20 mg of Compazine (nausea), 1mg of Ativan (sleep), and the main drug was DHE which is dihydroergotamine (vasoconstrictor). I didn't feel doped up or anything. I would arrive in hysterics crying in pain and after he would give me that thru an IV, I could get up and walk out after about 20 minutes. So if you can tell your dr about that, you should try it.
Now, back to my surgery....I'm going to let him go in and take those four nerves he freed of muscle, completely out. I will have some numbness in the back of my head, but I can live with that. The peripheral nerves do nothing but provide sensation to your head, they do not control any type of movement. Depending on where your headaches are located, he can do the occipital, temporal, or frontal nerves. Here is my doctor's website so you can read up on it: http://www.drducicplasticsurgery.com/Ducic_Plastic_Surgery/Migraine_Headache_Surgery.html
One big question: does he shave your hair? No, not even a little. I have very thick, below-my-shoulder length hair and not a strand gone when I woke up. It was a matted mess when I left the hospital, but you can wash it after 3 days. Dr. Ducic is at Georgetown University Hospital and he is an awesome doc.
I see that one of you is in VA, so you could see him easily. I live in Maryland and work in DC, but happened to catch a story about him on the news - I called the next day and saw him within a week or so. If you have any questions I can answer, just let me know. And I will be sure to keep you posted on this second surgery. Good luck.