New Member w/Migraines

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coconet
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/20/2012 8:33 AM (GMT -7)   
hello everyone, am new to here, i have had migraines for yrs now, but have got worse over the yrs, i get one at least every wk but this one has being going on for a month now and all my doctor does is give me pain killers, has anybody else had this problem, have asked my doctor if there is anything else that can help, was told i have to learn to live with them, please can someone help, i cant keep going on like this as it affects my work, please help : ( thank u
 
[added subject]

Post Edited By Moderator (notsosicklygirl) : 1/21/2012 10:01:04 AM (GMT-7)


Petes_wife
New Member


Date Joined Jan 2012
Total Posts : 5
   Posted 1/20/2012 11:01 AM (GMT -7)   
I hate when they just think that the pain medications are going to help - when all they do is really kind of allow you to sleep for a minute and then you wake up with the headache. I had to be detoxed off pain meds a couple of times - I was so reliant on them that my body needed them or I would get sick from not taking them. I take one pain medication now and it is not even for my migraines (for nerve pain that I have from a bad car accident) and the medication is extended release so it lasts 12 hours and if I miss a dose I am not freaking out like I was when I was on all that stuff for my headaches. The only thing I take for my headaches is execedrin migraine - if I can feel it coming and Imitrex if it is already here. And I occasionally have to take Phenergan for nausea. I don't take anything else for migraines. I have never, in 20 years, been able to take an over the counter med for my headaches. Until this last year.
Have you heard of peripheral nerve decompression surgery? I had it done a year ago and go back for the second surgery that will hopefully end my migraines (after 20 years of suffering) on 10 February. My doctor is Dr. Ivica Ducic at Georgetown University Hospital. Go to his website and check out the information. Not sure where you live, but you can research to see if anyone does it in your area. My insurance paid 100% and it was worth it to me. I didn't have a single migraine for almost 4 months after surgery and then they slowly started coming back but not in the same way. So he thinks that if he can go in and just remove the nerves in my occipital region (which is where he did the decompression) that I shouldn't have any more migraines. It will cause numbness on my scalp but who cares? The peripheral nerves do not control anything but sensation on the scalp and the numbness is so mild that you hardly notice it. I know because he took the two lesser nerves completely out, of the six he did the surgery for. Here is his information and if you have any more questions, don't hesitate. http://www.drducicplasticsurgery.com/Ducic_Plastic_Surgery/Home.html

coconet
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/20/2012 3:19 PM (GMT -7)   
Thank you for your reply, you have been through it by the sounds of it, i have had no scans or nothing to see if there is some thing else going on inside my head, it seems to easy for her to just keep handing out pain killers, after yrs of having these headaches that she would try and do more, i always thought she was a good doctor but now im not so sure, thank you for the link, im afraid i live in england but is still usefull as i can show my doctor and maybe she might refere me to something similar in this country, it would be nice to be migraine free for a few wks but a few months would be a bonus haha, thank you again

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15857
   Posted 1/20/2012 11:02 PM (GMT -7)   
I started an antidepressant for my migraines a few months ago and i've had amazing results. I definitely recommend giving it a try if you're open to it.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/21/2012 1:34 AM (GMT -7)   
There are many medications to prevent migraines, that you take every day. Topamax works for me, and without it I got 16-18 migraines a month. Migraines are evil, and any migraine will affect anything we're doing, including work. Get in with a Neurologist and talk about preventive migraine medications. Also write down anything you eat, drink, what you are doing and when the migraine starts IE:

500am 8 oz coffe, 1 piece of toast

800am 2 oz chocolate, 1 orange, water

900am Migraine starts feels like: a little man inside and chopping its way out with an axe
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

coconet
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/21/2012 5:19 AM (GMT -7)   
Thank you all for your replies, i have tried preventative meds and i had bad side affects from them so i was taken off, i also know what the cause is, i have an allergy to the uv rays in the sun and lights, i wear sun glases during the day if the sun is out and wear glases at work with protection on them but all that im trying isnt working, my doctor for some reason will not put me forward to see a Neurologist, was told i had to learn to live with them which i think is unfair, my life is being controlled by migraines and has been for several yrs now, this one i have now has been the longest so far,

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15857
   Posted 1/21/2012 9:59 AM (GMT -7)   
That's awful coconet. I can't believe your doctor said you have to learn to live with them. You should probably see another doctor. It would definitely be best for you to work with a Neurologist. I know if I hadn't gone to see a Neurologist, I'd still be battling 5+ days of debilitating migraines each month.

Have you tried migraine preventatives or an antidepressant? I never tried something specifically for migraines like Smurfy mentions. I tried a lot of tripthans and none helped. I eventually asked my Neurologist if I could try Pristiq, I remembered that she said it was an option at one of our previous appointments, she said OK and I've been migraine free since. I don't have any side effects from Pristiq but I am sure some people have problems.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

coconet
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/21/2012 3:28 PM (GMT -7)   
i have tried several preventatives and i suffered side affects so had to stop taking them, i get on well with my doctor and find her great when it comes to most things but when it comes to headaches she doesnt seem that interested, i have spent the last month with this head ache taking 8 tablets a day to try and get rid of the pain but they dont always work, so when i saw her on monday i thought she might of done something but she said there is nothing that can be done, why are doctors not more concerned when it comes to head aches, it could be something more serious, really not sure what to do or where to go next, my doctors practice dont allow you to see any other doctor than the one you are registerd with unless they are on holiday, when you do see another doctor they dont like doing alot because your not their patient, i cant afford to go private or i would, thank you for your reply notsosickgirl

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/21/2012 4:23 PM (GMT -7)   
Ok, your doctor's practice can NOT legally do that. You by law (H.R. 2457) are entitled a second medical opinion. Here's an example: Say i had the same doctor and I had a heart attack with the hospital being only a block away and the doctor office is 20 blocks away. Which one am I going to? Hospital, because it is closer in an emergency. Note, this was a mere example. Many people do not know about the Second Medical Opinion Act, hence why I, a CNA, spread the word. I would go to your doctor and say "what am I supposed to do in an emergency if I am out of town? I can't really just come here if I am in cardiac arrest or respitory failure". He'd flip out and ask why you think that and you can say "Well I need to go out of town for awhile, if anything happens, I'd rather not be in the morgue and if you insist I cant seek any medical treatment but here if anything happens to me that is where I will be and trust me I will I make a noterized statement declaring that your clinic refuses me to go to any other doctor including emergency care there of you put my life in danger". If you press him like that, he'll more than likely give in. I have a little shall we say bad tushie in me LOL
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~
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