Hi Suzane, I'm up early this Sunday morning when I should be getting ready for church, but am in to much pain, so guess I'll be staying home from church. :( You were asking what meds I was taking...currently on zonegran a low dose 100mg a day, zanaflex at night to help me sleep, toradol but can't take it no more than 2-3 times a week, cllonazepam and I have fioricet but none of these actually work!
I see my neurologist again in March, but honestly I'm wondering what he will try next since I've tried so much in the past without any success. I tried DHE protocol in the hospital and it helped in the hospital but as soon as I left I was right back to having the daily migraines. I also had botox injections and it didn't work, nerve blocks and they didn't work either. grrr!! it's sooooo frustrating!!
I went to see a chiropractor and she did deep tissue massage on my back,neck and shoulders because she said they were so tight and that was probably adding to my pain, but it was very painful and it didn't help. I wish I could afford to go to a headache clinic but right now I can't afford any more bills even with having insurance. There are always all the deductables that I have to pay.
Forgot to mention that I take lamictal for seizure control but am so THANKFUL to say that I am still seizure FREE after having the brain surgery back in 2002. :)) I've been through a lot, but refuse to give up! God has a plan and a purpose for us all!! God Bless!!
Please keep in touch, it really helps to have others to talk to that can relate to migraine pain. Is there anyway I can send you a private message on here so I can give you my email. Do you use Facebook?