I have no advice, but am super curious at any suggestions that come up. I've been having a lot of trouble since starting cimzia. In fact now that you mention it, it's probably why I've had a migraine the last couple of days...d'uh...just took cimzia.
I'm noticing it starting as a tension headache too. My neurologist said to treat it like a migraine, but I find the migraine just comes back if I don't treat the muscle tension. I just got muscle relaxers from my PCP. I asked her if there was a connection between the muscle pain and Crohn's and she said the Crohn's could aggravate it.
I'm on verapamil (blood pressure med) as a preventative. I can't tolerate as high a dose as the neurologist would like, but it seems to have cut down the frequency.
Diagnosed w/Crohn's in 2005. Meds: Cimzia, Pentasa (2pill, 2xday), synthroid, allergy meds, B-12 (liquid), multi-vitamin, probiotics, verapamil (daily) and other migraine meds prn, and xanax, ambien and vicodin prn. No surgeries.
Have tried: sulfasalazine, Asacol, entocort, imuran, humira, remicade (serious joint pain/fatigue stopped after 2 doses), 6MP