Could it be that the blood patch did not hold and that you may need another one done? Luckily I've not had experience with this and hope never to. BUT, a friend of mine had the experience you describe. Her first blood patch did the trick, but I just thought maybe yours may have let go and you may need another. Just a guess.
I had a horrific experience with a GYN/gut surgery that did not need to be done (upon review), many of the procedures done were not on the consent form, risk/ benefit analysis never done; I almost died and did end up losing half of my gut system. So far so good as I am, thanks to another doc who saved my life the best that could be done, but threat of future issues remain. So, though different issues, I hear you! Are patients ever really fully informed? NO! More is being left to us that is the docs' job to tell us prior to undergoing any procedure. I wish you all the luck in the world.